Disable all preview features

Health : Medical Research (Fundraising)

International Rett Syndrome Foundation

Funding research for treatments and a cure for Rett Syndrome

three stars

87.34

4600 Devitt Drive Cincinnati, OH 45246
tel: (800) 818-7388   Web Site
EIN: 31-1682518

Board Leadership
Peter White
Chair

CEO
Gordon Rich
Chief Operating Officer

  Score
(out of 100)
Rating
Overall Score & Rating 87.34 three stars
  Financial 82.10 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

three stars

82.10

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
86.3%
  Administrative Expenses 6.2%
  Fundraising Expenses 7.3%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 0.25
  Program Expenses Growth 3.6%
  Liabilities to Assets 65.5%
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 87.34 three stars
Arthritis National Research Foundation (CA) 97.17 four stars
Emergency Medicine Foundation (TX) 90.23 four stars
Multidisciplinary Association for Psychedelic Studies (CA) 86.00 three stars
American Psychiatric Association Foundation (VA) 92.19 four stars

Compare These Charities (Highly Rated)

The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,287,672
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,457,465
   Related Organizations $0
   Government Grants $0
Total Contributions $4,745,137
   Program Service Revenue $3,000
Total Primary Revenue $4,748,137
   Other Revenue $-216,473
TOTAL REVENUE $4,531,664
   
EXPENSES  
   Program Expenses $4,198,571
   Administrative Expenses $266,529
   Fundraising Expenses $292,518
TOTAL FUNCTIONAL EXPENSES $4,757,618
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-225,954
   
Net Assets $2,147,004

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $3,715,042 88.5%
Family Empowerment $404,173 9.6%
Education Activities $79,356 1.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 03/01/2017 87.34 three stars
2015-12 02/01/2017 87.16 three stars
2014-12 06/01/2016 87.43 three stars
 
CN 2.0
2014-12 02/01/2016 91.58 four stars
2013-12 06/01/2015 87.88 three stars
2012-12 04/01/2014 92.84 four stars
2012-12 02/01/2014 91.95 four stars
2011-12 12/01/2012 93.28 four stars
2010-12 02/01/2012 93.25 four stars
2009-12 09/20/2011 93.86 four stars
 
CN 1.0
2009-12 11/24/2010 91.32 four stars
2008-12 11/01/2009 94.86 four stars
2007-12 10/01/2008 94.41 four stars
2006-12 11/01/2007 89.30 three stars
2005-12 11/01/2006 92.15 four stars
2004-12 11/01/2005 92.01 four stars
2003-12 01/05/2005 89.66 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1682518
Name in IRS Master File INTERNATIONAL RETT SYNDROME FOUNDATION
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

We invite you to share your opinions, thoughts, experiences, and stories about this charity here to help inform the decisions of other donors.  
Need more help getting started? Check out our FAQs.
 
This tool is not for questions about Charity Navigator, such as how we derived this charity’s rating. We will happily answer those questions if you contact us directly. Likewise, if you have questions for this charity, then we encourage you to contact the charity directly (we include the charity’s contact information in the upper left-hand corner of this page) since few charities regularly monitor this commenting tool.

Compensation % of Expenses Paid to Title
Not compensated -- Gordon Rich Chief Operating Officer
Other Salaries of Note
$265,616 5.58% Steven Kaminsky Chief Science Officer
$122,932 2.58% Shannon Starkey-Taylor Chief Operating Officer

The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 87.34 three stars
Roswell Park Alliance Foundation (NY) 94.06 four stars
Autism Research Institute (CA) 92.92 four stars
CDC Foundation (GA) 96.66 four stars
Multidisciplinary Association for Psychedelic Studies (CA) 86.00 three stars

Compare These Charities (Highly Rated)

Are you the representative for this organization? If so, click here to access the application form. As an official representative you will have the ability to update some of the information on this page.

Charity Contact Info

International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati, OH 45246
tel: (800) 818-7388
fax: (513) 874-2520
EIN: 31-1682518

Mail donations to:
P.O. Box 706143
Cincinnati, OH 45270

Visit Web Site

Board Leadership

Peter White
Chair

CEO

Gordon Rich
Chief Operating Officer

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.

Help Center

Charity Navigator is turning 15!

Together, with donors like you, we have been able to:

  • Continually provide new and updated charity ratings
  • Increase charity transparency and accountability
  • Support the long-term missions of charities through our encouragement of informed giving

Did you know that we’re a charity, too? Your donation will help us provide new tools and information that you can rely on to make impactful giving choices. Your gift of any size will make a difference!

Support Charity Navigator
Not at This Time

We’re celebrating!

For 15 years, Charity Navigator has equipped donors with unbiased charity evaluations and tools to help you make informed giving decisions. Learn more about that journey and the bold goals on our road ahead.

Charity Navigator is turning 15!

Together, with donors like you, we have been able to:

  • Continually provide new and updated charity ratings
  • Increase charity transparency and accountability
  • Support the long-term missions of charities through our encouragement of informed giving

Did you know that we’re a charity, too? Your donation will help us provide new tools and information that you can rely on to make impactful giving choices. Your gift of any size will make a difference!