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Health : Medical Research (Grantmaking)

International Rett Syndrome Foundation

Funding research for treatments and a cure for Rett Syndrome

three stars

89.39

4600 Devitt Drive Cincinnati, OH 45246
tel: (800) 818-7388   Web Site
EIN: 31-1682518

Board Leadership
Peter White
Chair

CEO
Gordon Rich
Chief Operating Officer

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 89.39 three stars
  Financial 85.00 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 02/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

Results Information

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This results data is current as of November 2017, when it was provided to us by GuideStar. Results information published on this organization's rating page has no effect on its rating at this time. data iconLearn More

Financial

three stars

85.00

Accountability & Transparency

four stars

100.00

This rating was published 02/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
87.8%
  Administrative Expenses 5.4%
  Fundraising Expenses 6.6%
  Fundraising Efficiency $0.05
  Working Capital Ratio (years) 0.51
  Program Expenses Growth -0.7%
  Liabilities to Assets 37.6%
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 89.39 three stars
Emergency Medicine Foundation (TX) 94.34 four stars
myFace (NY) 93.69 four stars
Brain Research Foundation (IL) 93.20 four stars
Population Council (NY) 86.68 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,584,453
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,249,511
   Related Organizations $0
   Government Grants $111,019
Total Contributions $4,944,983
   Program Service Revenue $117,807
Total Primary Revenue $5,062,790
   Other Revenue $-396,451
TOTAL REVENUE $4,666,339
   
EXPENSES  
   Program Expenses $3,296,270
   Administrative Expenses $148,428
   Fundraising Expenses $195,241
TOTAL FUNCTIONAL EXPENSES $3,639,939
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,026,400
   
Net Assets $3,254,442

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,641,986 80.2%
Family Empowerment $490,484 14.9%
Education Activities $163,800 5.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 02/01/2018 89.39 three stars
2015-12 03/01/2017 87.34 three stars
2015-12 02/01/2017 87.16 three stars
2014-12 06/01/2016 87.43 three stars
 
CN 2.0
2014-12 02/01/2016 91.58 four stars
2013-12 06/01/2015 87.88 three stars
2012-12 04/01/2014 92.84 four stars
2012-12 02/01/2014 91.95 four stars
2011-12 12/01/2012 93.28 four stars
2010-12 02/01/2012 93.25 four stars
2009-12 09/20/2011 93.86 four stars
 
CN 1.0
2009-12 11/24/2010 91.32 four stars
2008-12 11/01/2009 94.86 four stars
2007-12 10/01/2008 94.41 four stars
2006-12 11/01/2007 89.30 three stars
2005-12 11/01/2006 92.15 four stars
2004-12 11/01/2005 92.01 four stars
2003-12 01/05/2005 89.66 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1682518
Name in IRS Master File INTERNATIONAL RETT SYNDROME FOUNDATION
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
Not compensated -- Gordon Rich Chief Operating Officer
Other Salaries of Note
$256,198 7.03% Steven Kaminsky Chief Science Officer
$10,000 0.27% Shannon Starkey-Taylor Chief Operating Officer

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 89.39 three stars
Cystinosis Research Foundation (CA) 90.72 four stars
FRAXA Research Foundation (MA) 92.92 four stars
American Skin Association (NY) 91.16 four stars
Foundation for Prader-Willi Research (CA) 91.29 four stars

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Charity Contact Info

International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati, OH 45246
tel: (800) 818-7388
fax: (513) 874-2520
EIN: 31-1682518

Mail donations to:
P.O. Box 706143
Cincinnati, OH 45270

Visit Web Site

Board Leadership

Peter White
Chair

CEO

Gordon Rich
Chief Operating Officer

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