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Health : Medical Research (Fundraising)

International Rett Syndrome Foundation

Funding research for treatments and a cure for Rett Syndrome

87.16

4600 Devitt Drive Cincinnati, OH 45246
tel: (800) 818-7388   Web Site
EIN: 31-1682518

Board Leadership
Peter White
Chair

CEO
Gordon Rich
Chief Operating Officer

  Score
(out of 100)
Rating
Overall Score & Rating 87.16
  Financial 82.10
  Accountability & Transparency 97.00
This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

82.10

Accountability & Transparency

97.00

This rating was published 02/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
86.3%
  Administrative Expenses 6.2%
  Fundraising Expenses 7.3%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 0.25
  Program Expenses Growth 3.6%
  Liabilities to Assets 65.5%
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by International Rett Syndrome Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 87.16
American Foundation for Surgery of the Hand (IL) 90.21
FRAXA Research Foundation (MA) 91.36
Will Rogers MPPF (CA) 85.64
LUNGevity Foundation (IL) 88.73

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The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,287,672
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $2,457,465
   Related Organizations $0
   Government Grants $0
Total Contributions $4,745,137
   Program Service Revenue $3,000
Total Primary Revenue $4,748,137
   Other Revenue $-216,473
TOTAL REVENUE $4,531,664
   
EXPENSES  
   Program Expenses $4,198,571
   Administrative Expenses $266,529
   Fundraising Expenses $292,518
TOTAL FUNCTIONAL EXPENSES $4,757,618
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-225,954
   
Net Assets $2,147,004

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $3,715,042 88.5%
Family Empowerment $404,173 9.6%
Education Activities $79,356 1.9%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 02/01/2017 87.16
2014-12 06/01/2016 87.43
 
CN 2.0
2014-12 02/01/2016 91.58
2013-12 06/01/2015 87.88
2012-12 04/01/2014 92.84
2012-12 02/01/2014 91.95
2011-12 12/01/2012 93.28
2010-12 02/01/2012 93.25
2009-12 09/20/2011 93.86
 
CN 1.0
2009-12 11/24/2010 91.32
2008-12 11/01/2009 94.86
2007-12 10/01/2008 94.41
2006-12 11/01/2007 89.30
2005-12 11/01/2006 92.15
2004-12 11/01/2005 92.01
2003-12 01/05/2005 89.66

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 31-1682518
Name in IRS Master File INTERNATIONAL RETT SYNDROME FOUNDATION
NTEE Code H12
NTEE Classification Fund Raising and/or Fund Distribution
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 2000
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
Not compensated -- Gordon Rich Chief Operating Officer
Other Salaries of Note
$265,616 5.58% Steven Kaminsky Chief Science Officer
$122,932 2.58% Shannon Starkey-Taylor Chief Operating Officer

The International Rett Syndrome Foundation (IRSF) was established in July 2007 through the strategic merger of the Rett Syndrome Research Foundation and the International Rett Syndrome Association. IRSF funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

Highly Rated

Charity Name & State Overall Score Overall Rating
International Rett Syndrome Foundation (OH) 87.16
Roswell Park Alliance Foundation (NY) 91.69
Dystonia Medical Research Foundation (IL) 87.09
Cystinosis Research Foundation (CA) 86.12
Concern Foundation (CA) 91.45

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Charity Contact Info

International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati, OH 45246
tel: (800) 818-7388
fax: (513) 874-2520
EIN: 31-1682518

Mail donations to:
P.O. Box 706143
Cincinnati, OH 45270

Visit Web Site

Board Leadership

Peter White
Chair

CEO

Gordon Rich
Chief Operating Officer

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