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Health : Diseases, Disorders, and Disciplines

National Ataxia Foundation

Improving the lives of persons affected by ataxia through support, education and research

three stars

83.84

600 Highway 169 South Suite 1725
St Louis Park, MN 55426
tel: (763) 553-0020   Web Site
EIN: 41-0832903

Board Leadership
William P. Sweeney
President

CEO
Andrew Rosen
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 83.84 three stars
  Financial 77.15 two stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The National Ataxia Foundation (NAF) was established in 1957 to help persons with ataxia and their families. The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families. As many as 150,000 Americans are affected by heredity or sporadic ataxia. Ataxia can strike anyone at any time regardless of age, gender, or race. Ataxia is a group of progressive neurological diseases which affects coordination and speech. The Foundation has developed an extensive library of NAF brochures, fact sheets, books, and videos on ataxia. Also available to its members is the Foundation's quarterly news publication, Generations.

The National Ataxia Foundation (NAF) was established in 1957 to help persons with ataxia and their families. The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families. As many as 150,000 Americans are affected by heredity or sporadic ataxia. Ataxia can strike anyone at any time regardless of age, gender, or race. Ataxia is a group of progressive neurological diseases which affects coordination and speech. The Foundation has developed an extensive library of NAF brochures, fact sheets, books, and videos on ataxia. Also available to its members is the Foundation's quarterly news publication, Generations.

Financial

two stars

77.15

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
66.9%
  Administrative Expenses 16.8%
  Fundraising Expenses 16.1%
  Fundraising Efficiency $0.15
  Working Capital Ratio (years) 1.29
  Program Expenses Growth 1.3%
  Liabilities to Assets 7.4%
All data for Financial Performance Metrics calculations was provided by National Ataxia Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Ataxia Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Ataxia Foundation (MN) 83.84 three stars
Glaucoma Research Foundation (CA) 90.35 four stars
National MPS Society (NC) 99.16 four stars
Cystic Fibrosis Research, Inc. (CA) 96.58 four stars
Dan Marino Foundation (FL) 96.46 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,556,684
   Federated Campaigns $16,109
   Membership Dues $20,349
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,593,142
   Program Service Revenue $368,391
Total Primary Revenue $2,961,533
   Other Revenue $108,788
TOTAL REVENUE $3,070,321
   
EXPENSES  
   Program Expenses $2,069,145
   Administrative Expenses $558,982
   Fundraising Expenses $422,964
TOTAL FUNCTIONAL EXPENSES $3,051,091
   
Payments to Affiliates $0
Excess (or Deficit) for the year $19,230
   
Net Assets $3,597,738

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,737,512 84.0%
Education $331,633 16.0%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 83.84 three stars
2018-12 02/01/2020 87.30 three stars
2017-12 02/01/2019 90.71 four stars
2016-12 08/01/2018 96.66 four stars
2016-12 03/01/2018 92.02 four stars
2015-12 02/01/2017 90.71 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 12/01/2015 96.32 four stars
2013-12 08/01/2015 94.79 four stars
2013-12 07/01/2015 92.85 four stars
2012-12 12/20/2013 96.33 four stars
2011-12 02/01/2013 87.54 three stars
2010-12 03/01/2012 81.21 three stars
2009-12 09/20/2011 86.27 three stars
 
CN 1.0
2009-12 03/01/2011 80.74 three stars
2008-12 03/01/2010 85.48 three stars
2007-12 11/01/2008 95.16 four stars
2006-12 12/01/2007 99.22 four stars
2005-12 11/01/2006 99.17 four stars
2004-12 11/01/2005 93.38 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 41-0832903
Name in IRS Master File NATIONAL ATAXIA FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(180) Contact or sponsored scientific research for industry
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name NATIONAL ATAXIA FOUNDATION INC
Ruling Date November, 1974
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$107,338 3.51% Andrew Rosen Executive Director
Other Salaries of Note
$131,035 4.29% Joel Sutherland Development Director

Highly Rated

Charity Name & State Overall Score Overall Rating
National Ataxia Foundation (MN) 83.84 three stars
Organization for Autism Research (VA) 95.71 four stars
GBS|CIDP Foundation International (PA) 100.00 four stars
Southwest Autism Research & Resource Center (AZ) 90.50 four stars
Histiocytosis Association (NJ) 91.16 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

National Ataxia Foundation
600 Highway 169 South
Suite 1725
St Louis Park, MN 55426
tel: (763) 553-0020
fax: (763) 553-0167
EIN: 41-0832903

Visit Web Site

Board Leadership

William P. Sweeney
President

CEO

Andrew Rosen
Executive Director

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