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Health : Diseases, Disorders, and Disciplines

National Ataxia Foundation

Improving the lives of persons affected by ataxia through support, education and research

three stars

87.30

600 Highway 169 South Suite 1725
St Louis Park, MN 55426
tel: (763) 553-0020   Web Site
EIN: 41-0832903

Board Leadership
William P. Sweeney
President

CEO
Andrew Rosen
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 87.30 three stars
  Financial 82.05 three stars
  Accountability & Transparency 100.00 four stars
This rating was published 02/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The National Ataxia Foundation (NAF) was established in 1957 to help persons with ataxia and their families. The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families. As many as 150,000 Americans are affected by heredity or sporadic ataxia. Ataxia can strike anyone at any time regardless of age, gender, or race. Ataxia is a group of progressive neurological diseases which affects coordination and speech. The Foundation has developed an extensive library of NAF brochures, fact sheets, books, and videos on ataxia. Also available to its members is the Foundation's quarterly news publication, Generations.

The National Ataxia Foundation (NAF) was established in 1957 to help persons with ataxia and their families. The Foundation's primary purpose is to support promising ataxia research and to provide vital programs and services for ataxia families. As many as 150,000 Americans are affected by heredity or sporadic ataxia. Ataxia can strike anyone at any time regardless of age, gender, or race. Ataxia is a group of progressive neurological diseases which affects coordination and speech. The Foundation has developed an extensive library of NAF brochures, fact sheets, books, and videos on ataxia. Also available to its members is the Foundation's quarterly news publication, Generations.

Impact Information

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Financial

three stars

82.05

Accountability & Transparency

four stars

100.00

This rating was published 02/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
74.7%
  Administrative Expenses 12.3%
  Fundraising Expenses 12.8%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 1.72
  Program Expenses Growth -12.1%
  Liabilities to Assets 4.7%
All data for Financial Performance Metrics calculations was provided by National Ataxia Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National Ataxia Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
National Ataxia Foundation (MN) 87.30 three stars
Epilepsy Foundation (MD) 90.77 four stars
Cystic Fibrosis Research, Inc. (CA) 97.17 four stars
National Foundation for Infectious Diseases (MD) 93.73 four stars
Autism Society of America (MD) 86.20 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,173,715
   Federated Campaigns $23,750
   Membership Dues $78,371
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $2,275,836
   Program Service Revenue $230,994
Total Primary Revenue $2,506,830
   Other Revenue $58,804
TOTAL REVENUE $2,565,634
   
EXPENSES  
   Program Expenses $1,005,188
   Administrative Expenses $348,965
   Fundraising Expenses $357,103
TOTAL FUNCTIONAL EXPENSES $1,711,256
   
Payments to Affiliates $0
Excess (or Deficit) for the year $854,378
   
Net Assets $3,503,680

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Education $515,613 51.3%
Research $489,575 48.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 02/01/2020 87.30 three stars
2017-12 02/01/2019 90.71 four stars
2016-12 08/01/2018 96.66 four stars
2016-12 03/01/2018 92.02 four stars
2015-12 02/01/2017 90.71 four stars
2014-12 06/01/2016 96.66 four stars
 
CN 2.0
2014-12 12/01/2015 96.32 four stars
2013-12 08/01/2015 94.79 four stars
2013-12 07/01/2015 92.85 four stars
2012-12 12/20/2013 96.33 four stars
2011-12 02/01/2013 87.54 three stars
2010-12 03/01/2012 81.21 three stars
2009-12 09/20/2011 86.27 three stars
 
CN 1.0
2009-12 03/01/2011 80.74 three stars
2008-12 03/01/2010 85.48 three stars
2007-12 11/01/2008 95.16 four stars
2006-12 12/01/2007 99.22 four stars
2005-12 11/01/2006 99.17 four stars
2004-12 11/01/2005 93.38 four stars
2003-12 04/01/2005 93.69 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 41-0832903
Name in IRS Master File NATIONAL ATAXIA FOUNDATION INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(180) Contact or sponsored scientific research for industry
(602) Gifts, grants, or loans to other organizations
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a parent (group ruling) and is not a church or 501(c)(1) organization.
Group Name NATIONAL ATAXIA FOUNDATION INC
Ruling Date November, 1974
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
Not compensated -- William Sweeney President

Highly Rated

Charity Name & State Overall Score Overall Rating
National Ataxia Foundation (MN) 87.30 three stars
Creutzfeldt-Jakob Disease Foundation (OH) 93.90 four stars
Jeffrey Modell Foundation (NY) 97.12 four stars
Beyond Celiac (PA) 89.14 three stars
National Alopecia Areata Foundation (CA) 91.48 four stars

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This charity has an official representative registered with Charity Navigator.

Official Charity Response

An explanation of the one-time change in the timing of our research grants and its negative impact on our Charity Navigator rating:

Due to a change in the timing of NAF’s research grant approval process, $1,079,500 of 2018 research grant awards were not paid until Q1 2019.  This resulted in a positive net income for the Foundation in 2018.  This is a one-time event.”  This negatively impacts the calculation of our fundraising expenses, our program expenses, and our program growth ratings in 2018.

Charity Contact Info

National Ataxia Foundation
600 Highway 169 South
Suite 1725
St Louis Park, MN 55426
tel: (763) 553-0020
fax: (763) 553-0167
EIN: 41-0832903

Visit Web Site

Board Leadership

William P. Sweeney
President

CEO

Andrew Rosen
Executive Director

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