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Health : Diseases, Disorders, and Disciplines

Fanconi Anemia Research Fund

Dedicated to finding effective treatments and a cure for Fanconi anemia

three stars

86.44

1801 Williamette Street Suite 200
Eugene, OR 97401
tel: (888) 326-2664   Web Site
EIN: 93-0995453

Board Leadership
Kevin McQueen
President

CEO
Cynthia Pappas
Interim Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 86.44 three stars
  Financial 97.50 four stars
  Accountability & Transparency 81.00 three stars
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Financial

four stars

97.50

Accountability & Transparency

three stars

81.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
86.0%
  Administrative Expenses 7.5%
  Fundraising Expenses 6.3%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 2.31
  Program Expenses Growth 12.3%
  Liabilities to Assets 15.9%
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 86.44 three stars
United Ability (AL) 95.46 four stars
The Progeria Research Foundation (MA) 97.94 four stars
Prader-Willi Syndrome Association (USA) (FL) 88.23 three stars
Cerebral Palsy Foundation (NY) 96.07 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,378,398
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,378,398
   Program Service Revenue $0
Total Primary Revenue $3,378,398
   Other Revenue $30,315
TOTAL REVENUE $3,408,713
   
EXPENSES  
   Program Expenses $1,937,315
   Administrative Expenses $220,327
   Fundraising Expenses $192,073
TOTAL FUNCTIONAL EXPENSES $2,349,715
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,058,998
   
Net Assets $5,138,645

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Support $1,660,464 85.7%
Education and Support for Families $276,851 14.3%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 12/01/2016 86.44 three stars
2014-12 06/01/2016 94.07 four stars
 
CN 2.0
2014-12 11/01/2015 92.04 four stars
2013-12 12/22/2014 96.51 four stars
2012-12 12/01/2013 93.01 four stars
2011-12 12/20/2012 91.74 four stars
2010-12 06/01/2012 89.88 three stars
2010-12 11/01/2011 88.40 three stars
2009-12 09/20/2011 94.21 four stars
 
CN 1.0
2009-12 03/01/2011 93.98 four stars
2008-12 02/01/2010 89.94 three stars
2007-12 12/01/2008 88.63 three stars
2006-12 09/01/2007 88.36 three stars
2005-12 10/01/2006 98.08 four stars
2004-12 07/01/2005 91.93 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 93-0995453
Name in IRS Master File FANCONI ANEMIA RESEARCH FUND INC
NTEE Code H90
NTEE Classification Medical Specialty Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (320) Boy Scouts, Girl Scouts, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1994
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$28,269 1.20% Pamela Norr Executive Director
Other Salaries of Note
$76,399 3.25% Laura Hays Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 86.44 three stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 95.31 four stars
United Ability (AL) 95.46 four stars
Cerebral Palsy Foundation (NY) 96.07 four stars
The Progeria Research Foundation (MA) 97.94 four stars

Compare These Charities (Highly Rated)

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Charity Contact Info

Fanconi Anemia Research Fund
1801 Williamette Street
Suite 200
Eugene, OR 97401
tel: (888) 326-2664
fax: (541) 687-0548
EIN: 93-0995453

Visit Web Site

Board Leadership

Kevin McQueen
President

CEO

Cynthia Pappas
Interim Executive Director

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