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Health : Diseases, Disorders, and Disciplines

Fanconi Anemia Research Fund

Dedicated to finding effective treatments and a cure for Fanconi anemia

four stars

94.74

1801 Williamette Street Suite 200
Eugene, OR 97401
tel: (888) 326-2664   Web Site
EIN: 93-0995453

Board Leadership
Mark Pearl
President

CEO
Mark Quinlan
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 94.74 four stars
  Financial 97.50 four stars
  Accountability & Transparency 93.00 four stars
This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Financial

four stars

97.50

Accountability & Transparency

four stars

93.00

This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.0%
  Administrative Expenses 8.4%
  Fundraising Expenses 6.5%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 2.04
  Program Expenses Growth 10.6%
  Liabilities to Assets 26.8%
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 94.74 four stars
United Ability (AL) 96.14 four stars
Cerebral Palsy Foundation (NY) 91.52 four stars
National Down Syndrome Society (NY) 87.28 three stars
The Cornelia de Lange Syndrome Foundation (CT) 100.00 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,096,737
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,096,737
   Program Service Revenue $0
Total Primary Revenue $3,096,737
   Other Revenue $105,877
TOTAL REVENUE $3,202,614
   
EXPENSES  
   Program Expenses $2,793,471
   Administrative Expenses $287,828
   Fundraising Expenses $197,469
TOTAL FUNCTIONAL EXPENSES $3,278,768
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-76,154
   
Net Assets $5,174,309

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Support $2,532,819 90.7%
Education and Support for Families $260,652 9.3%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 03/01/2018 94.74 four stars
2016-12 02/01/2018 89.24 three stars
2015-12 12/01/2016 86.44 three stars
2014-12 06/01/2016 94.07 four stars
 
CN 2.0
2014-12 11/01/2015 92.04 four stars
2013-12 12/22/2014 96.51 four stars
2012-12 12/01/2013 93.01 four stars
2011-12 12/20/2012 91.74 four stars
2010-12 06/01/2012 89.88 three stars
2010-12 11/01/2011 88.40 three stars
2009-12 09/20/2011 94.21 four stars
 
CN 1.0
2009-12 03/01/2011 93.98 four stars
2008-12 02/01/2010 89.94 three stars
2007-12 12/01/2008 88.63 three stars
2006-12 09/01/2007 88.36 three stars
2005-12 10/01/2006 98.08 four stars
2004-12 07/01/2005 91.93 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 93-0995453
Name in IRS Master File FANCONI ANEMIA RESEARCH FUND INC
NTEE Code H90
NTEE Classification Medical Specialty Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (320) Boy Scouts, Girl Scouts, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1994
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$23,581 0.71% Cynthia Pappas Executive Director
Other Salaries of Note
$97,073 2.96% Pamela Norr Former Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 94.74 four stars
Cerebral Palsy (WI) 88.50 three stars
The Cornelia de Lange Syndrome Foundation (CT) 100.00 four stars
National Down Syndrome Society (NY) 87.28 three stars
Angelman Syndrome Foundation (IL) 90.57 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Fanconi Anemia Research Fund
1801 Williamette Street
Suite 200
Eugene, OR 97401
tel: (888) 326-2664
EIN: 93-0995453

Visit Web Site

Board Leadership

Mark Pearl
President

CEO

Mark Quinlan
Executive Director

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