Health : Diseases, Disorders, and Disciplines

Fanconi Anemia Research Fund

Dedicated to finding effective treatments and a cure for Fanconi anemia

three stars

86.44

1801 Williamette Street Suite 200
Eugene, OR 97401
tel: (888) 326-2664   Web Site
EIN: 93-0995453

Board Leadership
Kevin McQueen
President

CEO
Cynthia Pappas
Interim Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 86.44 three stars
  Financial 97.50 four stars
  Accountability & Transparency 81.00 three stars
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

97.50

Accountability & Transparency

three stars

81.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
86.0%
  Administrative Expenses 7.5%
  Fundraising Expenses 6.3%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 2.31
  Program Expenses Growth 12.3%
  Liabilities to Assets 15.9%
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,378,398
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,378,398
   Program Service Revenue $0
Total Primary Revenue $3,378,398
   Other Revenue $30,315
TOTAL REVENUE $3,408,713
   
EXPENSES  
   Program Expenses $1,937,315
   Administrative Expenses $220,327
   Fundraising Expenses $192,073
TOTAL FUNCTIONAL EXPENSES $2,349,715
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,058,998
   
Net Assets $5,138,645

Charts

Compensation % of Expenses Paid to Title
$28,269 1.20% Pamela Norr Executive Director
Other Salaries of Note
$76,399 3.25% Laura Hays Executive Director

Mission

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 86.44 three stars
Alpha-1 Foundation (FL) 94.31 four stars
The Progeria Research Foundation (MA) 97.94 four stars
Prader-Willi Syndrome Association (USA) (FL) 88.23 three stars
Cerebral Palsy, Inc. (WI) 88.15 three stars

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Charity Contact Info

Fanconi Anemia Research Fund
1801 Williamette Street
Suite 200
Eugene, OR 97401
tel: (888) 326-2664
fax: (541) 687-0548
EIN: 93-0995453

Visit Web Site

Board Leadership

Kevin McQueen
President

CEO

Cynthia Pappas
Interim Executive Director

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