Health : Diseases, Disorders, and Disciplines

Fanconi Anemia Research Fund

Dedicated to finding effective treatments and a cure for Fanconi anemia

four stars

93.21

1801 Williamette Street Suite 200
Eugene, OR 97401
tel: (888) 326-2664   Web Site
EIN: 93-0995453

Board Leadership
Mark Pearl
President

CEO
Mark Quinlan
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 93.21 four stars
  Financial 90.41 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Financial

four stars

90.41

Accountability & Transparency

four stars

100.00

This rating was published 03/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
81.3%
  Administrative Expenses 10.2%
  Fundraising Expenses 8.4%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 2.42
  Program Expenses Growth 3.0%
  Liabilities to Assets 14.6%
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Fanconi Anemia Research Fund on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $3,262,131
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $0
Total Contributions $3,262,131
   Program Service Revenue $0
Total Primary Revenue $3,262,131
   Other Revenue $203,796
TOTAL REVENUE $3,465,927
   
EXPENSES  
   Program Expenses $1,889,162
   Administrative Expenses $322,728
   Fundraising Expenses $300,645
TOTAL FUNCTIONAL EXPENSES $2,512,535
   
Payments to Affiliates $0
Excess (or Deficit) for the year $953,392
   
Net Assets $6,579,698

Charts

Compensation % of Expenses Paid to Title
$76,394 3.04% Mark Quinlan Executive Director
Other Salaries of Note
$144,600 5.75% Bradley Preston Science Director
$44,173 1.75% Cynthia Pappas Former Executive Director

Mission

Founded in 1989, the mission of the Fanconi Anemia Research Fund is to find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide. Fanconi anemia (FA) is one of the inherited anemias that leads to bone marrow failure (aplastic anemia). Family Support Services provided by the Fanconi Anemia Research Fund include education to FA patients, their families, and treating physicians about the genetic causes and effects of FA and state of the art life-extending or life-saving treatments. Information is provided through publications, the Annual Family Meeting, regional meetings, and through consultation with our family support coordinator.

Highly Rated

Charity Name & State Overall Score Overall Rating
Fanconi Anemia Research Fund (OR) 93.21 four stars
Angelman Syndrome Foundation (IL) 90.57 four stars
The Progeria Research Foundation (MA) 94.88 four stars
Prader-Willi Syndrome Association (USA) (FL) 85.60 three stars
The Cornelia de Lange Syndrome Foundation (CT) 92.38 four stars

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Charity Contact Info

Fanconi Anemia Research Fund
1801 Williamette Street
Suite 200
Eugene, OR 97401
tel: (888) 326-2664
EIN: 93-0995453

Visit Web Site

Board Leadership

Mark Pearl
President

CEO

Mark Quinlan
Executive Director