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Health : Diseases, Disorders, and Disciplines

National MPS Society

Support for families. Research for a cure.

four stars

96.85

4220 Apex Highway Suite 140
Durham, NC 27713
tel: (877) 677-1001   Web Site
EIN: 11-2734849

Board Leadership
Stephanie Bozarth
President

CEO
Terri Klein
Executive Director

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 96.85 four stars
  Financial 98.05 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

Results Information

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Financial

four stars

98.05

Accountability & Transparency

four stars

96.00

This rating was published 03/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.2%
  Administrative Expenses 13.8%
  Fundraising Expenses 7.8%
  Fundraising Efficiency $0.06
  Working Capital Ratio (years) 1.70
  Program Expenses Growth 10.3%
  Liabilities to Assets 0.3%
All data for Financial Performance Metrics calculations was provided by National MPS Society on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by National MPS Society on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
National MPS Society (NC) 96.85 four stars
Asthma and Allergy Foundation of America (MD) 88.21 three stars
GBS|CIDP Foundation International (PA) 100.00 four stars
American Autoimmune Related Diseases Association (MI) 98.23 four stars
Childhood Apraxia of Speech Association of North America (PA) 92.22 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,177,818
   Federated Campaigns $31,631
   Membership Dues $26,600
   Fundraising Events $541,047
   Related Organizations $0
   Government Grants $0
Total Contributions $1,777,096
   Program Service Revenue $41,950
Total Primary Revenue $1,819,046
   Other Revenue $-68,925
TOTAL REVENUE $1,750,121
   
EXPENSES  
   Program Expenses $1,211,411
   Administrative Expenses $214,648
   Fundraising Expenses $118,825
TOTAL FUNCTIONAL EXPENSES $1,544,884
   
Payments to Affiliates $0
Excess (or Deficit) for the year $205,237
   
Net Assets $3,319,605

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Information Services & Educational Support $838,781 69.2%
Research Grants $308,800 25.5%
Medical Equipment Scholarships $63,830 5.3%

Ratings History
National MPS Society has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 03/01/2018 96.85 four stars
2015-12 12/01/2016 90.29 four stars
2014-12 06/01/2016 93.62 four stars
 
CN 2.0
2014-12 12/01/2015 95.14 four stars
2013-12 05/01/2015 90.53 four stars
2012-12 12/01/2013 85.68 three stars
2011-12 02/01/2013 84.69 three stars
2011-12 12/20/2012 84.54 three stars
2010-12 03/01/2012 91.98 four stars
2009-12 10/01/2011 90.44 four stars
2009-12 09/20/2011 88.64 three stars
 
CN 1.0
2009-12 04/01/2011 85.54 three stars
2008-12 04/01/2010 98.19 four stars
2007-12 12/17/2008 86.73 three stars
2006-12 04/01/2008 98.33 four stars
2005-12 04/01/2007 92.27 four stars
2004-12 04/01/2006 98.46 four stars
2003-12 07/01/2005 98.50 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 11-2734849
Name in IRS Master File NATIONAL MPS SOCIETY INC
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (125) Giving information or opinion (see also Advocacy)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date July, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$87,175 5.64% Mark Dant CEO, President

Highly Rated

Charity Name & State Overall Score Overall Rating
National MPS Society (NC) 96.85 four stars
Massachusetts Down Syndrome Congress (MA) 89.75 three stars
American Brain Tumor Association (IL) 89.86 three stars
Doug Flutie Jr. Foundation For Autism (MA) 85.54 three stars
National Alopecia Areata Foundation (CA) 91.42 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

National MPS Society
4220 Apex Highway
Suite 140
Durham, NC 27713
tel: (877) 677-1001
fax: (919) 806-2055
EIN: 11-2734849

Mail donations to:
P.O. Box 14686
Durham, NC 27709

Visit Web Site

Board Leadership

Stephanie Bozarth
President

CEO

Terri Klein
Executive Director

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