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Health : Diseases, Disorders, and Disciplines

Immune Deficiency Foundation

Improving the diagnosis, treatment and quality of life of people affected by primary immunodeficiencies

92.70

110 West Road Suite 300
Towson, MD 21204
tel: (800) 296-4433   Web Site
EIN: 52-1214782

Board Leadership
John Seymour
Chair

CEO
Kathryn Stephens
Interim CEO

  Score
(out of 100)
Rating
Overall Score & Rating 92.70
  Financial 90.49
  Accountability & Transparency 96.00
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research.

The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research.

Financial

90.49

Accountability & Transparency

96.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.2%
  Administrative Expenses 9.8%
  Fundraising Expenses 6.8%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.36
  Program Expenses Growth < 0.1%
  Liabilities to Assets 7.9%
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Immune Deficiency Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Immune Deficiency Foundation (MD) 92.70
Huntington's Disease Society of America (NY) 89.93
MDS Foundation (NJ) 91.45
Southwest Autism Research & Resource Center (AZ) 90.50
Global Lyme Alliance (CT) 92.93

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $6,432,216
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $582,714
   Related Organizations $0
   Government Grants $1,928,911
Total Contributions $8,943,841
   Program Service Revenue $149,900
Total Primary Revenue $9,093,741
   Other Revenue $366,276
TOTAL REVENUE $9,460,017
   
EXPENSES  
   Program Expenses $6,952,665
   Administrative Expenses $718,401
   Fundraising Expenses $930,546
TOTAL FUNCTIONAL EXPENSES $8,601,612
   
Payments to Affiliates $0
Excess (or Deficit) for the year $858,405
   
Net Assets $10,603,450

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Medical Outreach, Education, and Survey Research $2,739,914 39.4%
Medical Community Resources $1,300,605 18.7%
Patient Advocacy Services and Individualized Assistance $510,195 7.3%

Ratings History
Immune Deficiency Foundation has received 8 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 92.70
2018-12 12/01/2019 93.68
2017-12 04/01/2019 97.17
2016-12 03/01/2018 95.25
2015-12 05/01/2017 97.17
2014-12 06/01/2016 95.47
 
CN 2.0
2014-12 11/01/2015 93.77
2013-12 05/01/2015 97.03
2012-12 03/01/2014 98.98
2011-12 02/01/2013 89.75
2010-12 03/01/2012 92.16
2009-12 09/20/2011 87.23
 
CN 1.0
2009-12 06/01/2011 98.62
2008-12 07/01/2010 76.29
2007-12 05/01/2009 76.29
2006-12 04/01/2008 82.20
2005-12 04/01/2007 79.74
2004-12 05/01/2006 85.88
2003-12 07/01/2005 89.84

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1214782
Name in IRS Master File IMMUNE DEFICIENCY FOUNDATION
NTEE Code H9C
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Central - the organization is a central type organization (no group exemption) of a National, Regional or Geographic grouping of organizations.
Group Name [Not Applicable]
Ruling Date April, 1986
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
Compensation % of Expenses Paid to Title
$193,750 2.25% John G. Boyle President & CEO

Highly Rated

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Immune Deficiency Foundation
110 West Road
Suite 300
Towson, MD 21204
tel: (800) 296-4433
fax: (410) 321-9165
EIN: 52-1214782

Visit Web Site

Board Leadership

John Seymour
Chair

CEO

Kathryn Stephens
Interim CEO

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