Health : Diseases, Disorders, and Disciplines

The Cornelia de Lange Syndrome Foundation

Reaching Out, Providing Help, and Giving Hope.

four stars

96.66

30 Tower Lane Suite 400
Avon, CT 06001
tel: (800) 676-8166   Web Site
EIN: 06-1057497

Board Leadership
Mike Christie
President

CEO
Bonnie Royster
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 96.66 four stars
  Financial 97.50 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 04/01/2020 and includes data from FY2018, the most recent 990 received at that time.

Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation' mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. We have served individuals with CdLS and their families since 1981. We distribute a number of publications to families and professionals caring for individuals with CdLS, as well as host meetings and conferences where researchers and families can meet to exchange information. We also act as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation' mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. We have served individuals with CdLS and their families since 1981. We distribute a number of publications to families and professionals caring for individuals with CdLS, as well as host meetings and conferences where researchers and families can meet to exchange information. We also act as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

Impact Information

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Financial

four stars

97.50

Accountability & Transparency

four stars

96.00

This rating was published 04/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.2%
  Administrative Expenses 7.4%
  Fundraising Expenses 7.2%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 0.92
  Program Expenses Growth 14.9%
  Liabilities to Assets 2.4%
All data for Financial Performance Metrics calculations was provided by The Cornelia de Lange Syndrome Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Cornelia de Lange Syndrome Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $596,942
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $302,437
   Related Organizations $0
   Government Grants $0
Total Contributions $899,379
   Program Service Revenue $0
Total Primary Revenue $899,379
   Other Revenue $131,879
TOTAL REVENUE $1,031,258
   
EXPENSES  
   Program Expenses $993,922
   Administrative Expenses $98,486
   Fundraising Expenses $95,282
TOTAL FUNCTIONAL EXPENSES $1,187,690
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-156,432
   
Net Assets $975,121

Charts

Compensation % of Expenses Paid to Title
$98,396 8.28% Morrisette Royster Executive Director

Mission

Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation' mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. We have served individuals with CdLS and their families since 1981. We distribute a number of publications to families and professionals caring for individuals with CdLS, as well as host meetings and conferences where researchers and families can meet to exchange information. We also act as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Cornelia de Lange Syndrome Foundation (CT) 96.66 four stars
Prader-Willi Syndrome Association (USA) (FL) 88.00 three stars
Angelman Syndrome Foundation (IL) 90.55 four stars
United Ability (AL) 95.72 four stars
MiracleFeet (NC) 96.99 four stars

Compare These Charities (Highly Rated)

Charity Contact Info

The Cornelia de Lange Syndrome Foundation
30 Tower Lane
Suite 400
Avon, CT 06001
tel: (800) 676-8166
fax: (860) 676-8337
EIN: 06-1057497

Visit Web Site

Board Leadership

Mike Christie
President

CEO

Bonnie Royster
Executive Director