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Health : Medical Research (Grantmaking)

Scleroderma Research Foundation

Research is at the center of all we do.

four stars

98.00

220 Montgomery Street Suite 484
San Francisco, CA 94104
tel: (415) 834-9444   Web Site
EIN: 68-0087234

Board Leadership
Luke Evnin
Chair

CEO
Joanne Gold
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 98.00 four stars
  Financial 97.18 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Scleroderma Research Foundation (SRF) is the nation's leading nonprofit investor in medical research aimed at discovering improved therapies and, ultimately, a cure for people living with scleroderma. Founded in 1987 by patient and activist Sharon Monsky, the SRF funds and facilitates the most promising, highest quality research and works to increase awareness of this life-threatening illness. To date, the SRF has invested more than $30,000,000 in groundbreaking science at some of the world's most prestigious research institutions and continues to lead the way in the search for improved therapies and a cure.

The Scleroderma Research Foundation (SRF) is the nation's leading nonprofit investor in medical research aimed at discovering improved therapies and, ultimately, a cure for people living with scleroderma. Founded in 1987 by patient and activist Sharon Monsky, the SRF funds and facilitates the most promising, highest quality research and works to increase awareness of this life-threatening illness. To date, the SRF has invested more than $30,000,000 in groundbreaking science at some of the world's most prestigious research institutions and continues to lead the way in the search for improved therapies and a cure.

Financial

four stars

97.18

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
83.9%
  Administrative Expenses 8.8%
  Fundraising Expenses 7.2%
  Fundraising Efficiency $0.04
  Working Capital Ratio (years) 2.41
  Program Expenses Growth 8.9%
  Liabilities to Assets 3.9%
All data for Financial Performance Metrics calculations was provided by Scleroderma Research Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Scleroderma Research Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Scleroderma Research Foundation (CA) 98.00 four stars
National Pediatric Cancer Foundation (FL) 100.00 four stars
Pediatric Brain Tumor Foundation (NC) 92.61 four stars
Moffitt Cancer Center Foundation (FL) 92.95 four stars
Hearing Health Foundation (NY) 92.92 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $4,007,701
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,414,720
   Related Organizations $0
   Government Grants $0
Total Contributions $5,422,421
   Program Service Revenue $0
Total Primary Revenue $5,422,421
   Other Revenue $-254,299
TOTAL REVENUE $5,168,122
   
EXPENSES  
   Program Expenses $2,765,497
   Administrative Expenses $369,939
   Fundraising Expenses $228,803
TOTAL FUNCTIONAL EXPENSES $3,364,239
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,803,883
   
Net Assets $7,148,951

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $2,765,497 100.0%

Ratings History
Scleroderma Research Foundation has received 7 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-04 04/01/2021 98.00 four stars
2019-04 02/01/2021 91.97 four stars
2018-04 08/01/2019 96.80 four stars
2017-04 08/01/2018 97.17 four stars
2016-04 08/01/2017 97.17 four stars
2015-04 06/01/2016 97.17 four stars
 
CN 2.0
2015-04 02/01/2016 97.01 four stars
2014-04 08/01/2015 90.54 four stars
2013-04 12/20/2013 91.53 four stars
2012-04 06/01/2013 86.89 three stars
2011-04 05/01/2012 91.45 four stars
2010-04 09/20/2011 86.34 three stars
 
CN 1.0
2010-04 06/01/2011 79.71 two stars
2009-04 11/24/2010 81.21 three stars
2008-04 02/01/2009 82.88 three stars
2007-04 05/01/2008 88.59 three stars
2006-04 02/01/2007 88.61 three stars
2005-04 05/01/2006 95.84 four stars
2004-04 07/01/2005 92.80 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 68-0087234
Name in IRS Master File SCLERODERMA RESEARCH FOUNDATION
NTEE Code H46
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1987
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End April
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • April, 2018
  • April, 2017
  • April, 2016
  • April, 2015
  • April, 2014
Compensation % of Expenses Paid to Title
$139,692 4.15% Tom Frank Executive Director
Other Salaries of Note
$48,750 1.44% Amy Hewitt Former Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
Scleroderma Research Foundation (CA) 98.00 four stars
Brain & Behavior Research Foundation (NY) 88.78 three stars
MPN Research Foundation (IL) 89.76 three stars
Children's Cancer & Blood Foundation (NY) 85.42 three stars
Foundation Fighting Blindness (MD) 85.99 three stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Scleroderma Research Foundation
220 Montgomery Street
Suite 484
San Francisco, CA 94104
tel: (415) 834-9444
EIN: 68-0087234

Visit Web Site

Board Leadership

Luke Evnin
Chair

CEO

Joanne Gold
Executive Director

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