This rating was published 04/01/2017 using data provided by the charity on a consolidated pro forma 990 which was verified against 990s received from the IRS.
The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name
Amount Spent
% of Program Expenses
Medical Programs
$193,991,454
86.9%
Public Information and Education
$20,922,456
9.4%
Community Service Programs
$8,368,074
3.7%
Ratings History Cystic Fibrosis Foundation has received 4 consecutive 4-star ratings from Charity Navigator.
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
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The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.
This charity has an official representative registered with Charity Navigator.
Note: This rating represents consolidated financial data for these organizations:
Cystic Fibrosis Foundation - Headquarters
Cystic Fibrosis Foundation - Group Return
(13-6161105)
(13-6161105)
This EIN was included when the consolidated rating was issued. However, it is not present currently in the IRS Master Business File, so we cannot link to it. [Close]
Cystic Fibrosis Foundation Therapeutics
(91-2059167)
