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Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Foundation

Adding tomorrows every day

four stars

98.23

4550 Montgomery Avenue Suite 1100N
Bethesda, MD 20814
tel: (800) 344-4823   Web Site
EIN: 13-1930701

Board Leadership
Catherine McCloud
Chair

CEO
Preston W. Campbell, III, M.D.
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 98.23 four stars
  Financial 97.50 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 05/01/2018 using data provided by the charity on a consolidated pro forma 990 which was verified against 990s received from the IRS.

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

Impact Information

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Financial

four stars

97.50

Accountability & Transparency

four stars

100.00

This rating was published 05/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
85.8%
  Administrative Expenses 6.6%
  Fundraising Expenses 7.4%
  Fundraising Efficiency $0.16
  Working Capital Ratio (years) 13.73
  Program Expenses Growth 24.6%
  Liabilities to Assets 5.0%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.
Joint Cost Allocation Adjustment applied. Learn more.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Foundation (MD) 98.23 four stars
Parent Project Muscular Dystrophy (NJ) 90.72 four stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
Hunter's Hope Foundation (NY) 87.89 three stars
Osteogenesis Imperfecta Foundation (MD) 93.31 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $30,046,601
   Federated Campaigns $934,247
   Membership Dues $0
   Fundraising Events $86,167,903
   Related Organizations $0
   Government Grants $0
Total Contributions $117,148,751
   Program Service Revenue $53,770,106
Total Primary Revenue $170,918,857
   Other Revenue $75,449,814
TOTAL REVENUE $246,368,671
   
EXPENSES (Adjusted)  
   Program Expenses $306,775,577
   Administrative Expenses $23,557,521
   Fundraising Expenses $23,157,129
TOTAL FUNCTIONAL EXPENSES $353,490,227
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-107,121,556
   
Net Assets $3,732,155,178

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Medical Programs $277,291,060 90.3%
Community Service Programs $15,317,468 5.0%
Public Information and Education $14,539,590 4.7%

Ratings History
Cystic Fibrosis Foundation has received 5 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 05/01/2018 98.23 four stars
2015-12 04/01/2017 94.70 four stars
2014-12 12/01/2016 94.63 four stars
2014-12 06/01/2016 91.95 four stars
 
CN 2.0
2014-12 02/01/2016 91.69 four stars
2013-12 05/01/2015 92.80 four stars
2012-12 04/01/2014 94.82 four stars
2011-12 03/01/2013 87.88 three stars
2010-12 09/01/2012 88.87 three stars
2010-12 11/01/2011 89.30 three stars
2009-12 09/20/2011 89.34 three stars
 
CN 1.0
2009-12 03/01/2011 78.33 two stars
2007-12 08/01/2009 93.37 four stars
2006-12 03/01/2008 93.24 four stars
2005-12 07/01/2007 86.13 three stars
2004-12 12/01/2005 88.86 three stars
2003-12 07/01/2005 79.21 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-1930701
Name in IRS Master File CYSTIC FIBROSIS FOUNDATION
NTEE Code G20
NTEE Classification Birth Defects and Genetic Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(180) Contact or sponsored scientific research for industry
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1957
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title Compensation from Affiliates
$616,640 0.17% Preston Campbell President & CEO $304,574
Other Salaries of Note
$830,745 0.23% John Mahler Chief Investment Officer --

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Foundation (MD) 98.23 four stars
FSH Society (MA) 95.03 four stars
National Osteoporosis Foundation (VA) 86.58 three stars
Osteogenesis Imperfecta Foundation (MD) 93.31 four stars
Parent Project Muscular Dystrophy (NJ) 90.72 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Note: This rating represents consolidated financial data for these organizations:

  • Cystic Fibrosis Foundation - Headquarters
  • Cystic Fibrosis Foundation - Group Return (13-6161105) (13-6161105)
  • Cystic Fibrosis Foundation Therapeutics (91-2059167)

Charity Contact Info

Cystic Fibrosis Foundation
4550 Montgomery Avenue
Suite 1100N
Bethesda, MD 20814
tel: (800) 344-4823
fax: (301) 951-6378
EIN: 13-1930701

Visit Web Site

Board Leadership

Catherine McCloud
Chair

CEO

Preston W. Campbell, III, M.D.
President & CEO

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