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Health : Diseases, Disorders, and Disciplines
Board Leadership
Catherine McCloud
Chair
CEO
Preston W. Campbell, III, M.D.
President & CEO
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The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.
The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.
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97.47
100.00
Program Expenses (Percent of the charity's total expenses spent on the programs and services it delivers) |
84.9% | |
Administrative Expenses | 7.6% | |
Fundraising Expenses | 7.3% | |
Fundraising Efficiency | $0.19 | |
Working Capital Ratio (years) | 13.75 | |
Program Expenses Growth | 13.4% | |
Liabilities to Assets | 4.8% |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Cystic Fibrosis Foundation (MD) | 98.21 | |
Cure SMA (IL) | 90.45 | |
Aplastic Anemia & MDS International Foundation (MD) | 92.00 | |
Hunter's Hope Foundation (NY) | 90.45 | |
Epilepsy Foundation of Minnesota (MN) | 89.56 |
REVENUE | |
Contributions | |
Contributions, Gifts & Grants | $25,813,857 |
Federated Campaigns | $788,902 |
Membership Dues | $0 |
Fundraising Events | $84,047,514 |
Related Organizations | $0 |
Government Grants | $0 |
Total Contributions | $110,650,273 |
Program Service Revenue | $4,098,962 |
Total Primary Revenue | $114,749,235 |
Other Revenue | $170,182,945 |
TOTAL REVENUE | $284,932,180 |
EXPENSES (Adjusted) | |
Program Expenses | $248,140,999 |
Administrative Expenses | $28,791,003 |
Fundraising Expenses | $25,284,847 |
TOTAL FUNCTIONAL EXPENSES | $302,216,849 |
Payments to Affiliates | $0 |
Excess (or Deficit) for the year | $-17,284,669 |
Net Assets | $4,194,186,065 |
Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.
Program Name | Amount Spent | % of Program Expenses |
---|---|---|
Medical Programs | $213,999,714 | 86.0% |
Community Service Programs | $17,822,831 | 7.2% |
Public Information and Education | $16,900,416 | 6.8% |
Form 990 FYE | Date Published | Overall Score | Overall Rating | ||||||
---|---|---|---|---|---|---|---|---|---|
CN 2.1 | |||||||||
2017-12 | 08/01/2019 | 98.21 | |||||||
2016-12 | 05/01/2018 | 98.23 | |||||||
2015-12 | 04/01/2017 | 94.70 | |||||||
2014-12 | 12/01/2016 | 94.63 | |||||||
2014-12 | 06/01/2016 | 91.95 | |||||||
CN 2.0 | |||||||||
2014-12 | 02/01/2016 | 91.69 | |||||||
2013-12 | 05/01/2015 | 92.80 | |||||||
2012-12 | 04/01/2014 | 94.82 | |||||||
2011-12 | 03/01/2013 | 87.88 | |||||||
2010-12 | 09/01/2012 | 88.87 | |||||||
2010-12 | 11/01/2011 | 89.30 | |||||||
2009-12 | 09/20/2011 | 89.34 | |||||||
CN 1.0 | |||||||||
2009-12 | 03/01/2011 | 78.33 | |||||||
2007-12 | 08/01/2009 | 93.37 | |||||||
2006-12 | 03/01/2008 | 93.24 | |||||||
2005-12 | 07/01/2007 | 86.13 | |||||||
2004-12 | 12/01/2005 | 88.86 | |||||||
2003-12 | 07/01/2005 | 79.21 |
The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).
EIN | 13-1930701 |
Name in IRS Master File | CYSTIC FIBROSIS FOUNDATION |
NTEE Code | G20 |
NTEE Classification | Birth Defects and Genetic Diseases |
NTEE Type | Diseases, Disorders, Medical Disciplines |
Classification | Charitable Organization |
Subsection | 501(c)(3) (View the list of codes) |
Activities | (161) Scientific research (diseases) (180) Contact or sponsored scientific research for industry (179) Other health services |
Foundation Status | Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) |
Deductibility | Contributions are deductible |
Affiliation | Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). |
Group Name | [Not Applicable] |
Ruling Date | November, 1957 |
Filing Requirement | 990 (all other) or 990EZ return |
Fiscal Year End | December |
IRS Forms 990 (provided courtesy of Foundation Center) |
(Log In or Register Now to View Forms 990!)
|
Compensation | % of Expenses | Paid to | Title | Compensation from Affiliates |
---|---|---|---|---|
$805,765 | 0.26% | Preston Campbell | President & CEO | $396,810 |
Other Salaries of Note | ||||
$1,197,052 | 0.39% | Jack Mahler | Chief Investment Officer | -- |
$383,094 | 0.12% | Robert J. Beall | Former CEO | $55,949 |
Charity Name & State | Overall Score | Overall Rating |
---|---|---|
Cystic Fibrosis Foundation (MD) | 98.21 | |
The Boomer Esiason Foundation (NY) | 91.46 | |
Cure SMA (IL) | 90.45 | |
Aplastic Anemia & MDS International Foundation (MD) | 92.00 | |
Hunter's Hope Foundation (NY) | 90.45 |
This charity has an official representative registered with Charity Navigator.
Note: This rating represents consolidated financial data for these organizations:
Cystic Fibrosis Foundation
4550 Montgomery Avenue
Suite 1100N
Bethesda,
MD 20814
tel: (800) 344-4823
fax: (301) 951-6378
EIN: 13-1930701
Catherine McCloud
Chair
Preston W. Campbell, III, M.D.
President & CEO
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923
Charity Navigator
139 Harristown Rd Suite 101
Glen Rock, NJ 07452
EIN: 13-4148824
BRIDGE ID: 3108588923