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Health : Diseases, Disorders, and Disciplines

Cystic Fibrosis Foundation

Adding tomorrows every day

four stars

94.70

6931 Arlington Road 2nd Floor
Bethesda, MD 20814
tel: (800) 344-4823   Web Site
EIN: 13-1930701

Board Leadership
Catherine McCloud
Chair

CEO
Preston W. Campbell, III, M.D.
President & CEO

 
 
  Score
(out of 100)
Rating
Overall Score & Rating 94.70 four stars
  Financial 97.35 four stars
  Accountability & Transparency 93.00 four stars
This rating was published 04/01/2017 using data provided by the charity on a consolidated pro forma 990 which was verified against 990s received from the IRS.

Learn more about how we calculate the overall score and rating.

Financial

four stars

97.35

Accountability & Transparency

four stars

93.00

This rating was published 04/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
84.5%
  Administrative Expenses 6.8%
  Fundraising Expenses 8.6%
  Fundraising Efficiency $0.14
  Working Capital Ratio (years) 16.92
  Program Expenses Growth 14.8%
  Liabilities to Assets 3.9%
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Cystic Fibrosis Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Foundation (MD) 94.70 four stars
The Boomer Esiason Foundation (NY) 96.46 four stars
Hunter's Hope Foundation (NY) 93.80 four stars
Osteogenesis Imperfecta Foundation (MD) 85.27 three stars
Parent Project Muscular Dystrophy (NJ) 91.66 four stars

Compare These Charities (Highly Rated)

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $30,722,258
   Federated Campaigns $1,099,604
   Membership Dues $0
   Fundraising Events $90,388,671
   Related Organizations $0
   Government Grants $0
Total Contributions $122,210,533
   Program Service Revenue $2,336,415
Total Primary Revenue $124,546,948
   Other Revenue $89,274,989
TOTAL REVENUE $213,821,937
   
EXPENSES (Adjusted)  
   Program Expenses $221,903,338
   Administrative Expenses $18,026,507
   Fundraising Expenses $18,419,757
TOTAL FUNCTIONAL EXPENSES $258,349,602
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-44,527,665
   
Net Assets $3,679,424,528

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Medical Programs $193,991,454 86.9%
Public Information and Education $20,922,456 9.4%
Community Service Programs $8,368,074 3.7%

Ratings History
Cystic Fibrosis Foundation has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 04/01/2017 94.70 four stars
2014-12 12/01/2016 94.63 four stars
2014-12 06/01/2016 91.95 four stars
 
CN 2.0
2014-12 02/01/2016 91.69 four stars
2013-12 05/01/2015 92.80 four stars
2012-12 04/01/2014 94.82 four stars
2011-12 03/01/2013 87.88 three stars
2010-12 09/01/2012 88.87 three stars
2010-12 11/01/2011 89.30 three stars
2009-12 09/20/2011 89.34 three stars
 
CN 1.0
2009-12 03/01/2011 78.33 two stars
2007-12 08/01/2009 93.37 four stars
2006-12 03/01/2008 93.24 four stars
2005-12 07/01/2007 86.13 three stars
2004-12 12/01/2005 88.86 three stars
2003-12 07/01/2005 79.21 two stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 13-1930701
Name in IRS Master File CYSTIC FIBROSIS FOUNDATION
NTEE Code G20
NTEE Classification Birth Defects and Genetic Diseases
NTEE Type Diseases, Disorders, Medical Disciplines
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
(180) Contact or sponsored scientific research for industry
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date November, 1957
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title Compensation from Affiliates
$496,970 0.19% Preston Campbell President, CEO $245,571
Other Salaries of Note
$2,718,373 1.05% C. Richard Mattingly Executive Vice President, COO --
$1,575,208 0.60% Robert J. Beall Former President, CEO $779,230

The Cystic Fibrosis Foundation (CFF) was established in 1955 to assure the development of the means to cure and control cystic fibrosis (CF) and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus.

Highly Rated

Charity Name & State Overall Score Overall Rating
Cystic Fibrosis Foundation (MD) 94.70 four stars
Charcot-Marie-Tooth Association (PA) 87.18 three stars
Friedreich's Ataxia Research Alliance (PA) 98.23 four stars
The Boomer Esiason Foundation (NY) 96.46 four stars
Osteogenesis Imperfecta Foundation (MD) 85.27 three stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Note: This rating represents consolidated financial data for these organizations:

  • Cystic Fibrosis Foundation - Headquarters
  • Cystic Fibrosis Foundation - Group Return (13-6161105) (13-6161105)
  • Cystic Fibrosis Foundation Therapeutics (91-2059167)

Charity Contact Info

Cystic Fibrosis Foundation
6931 Arlington Road
2nd Floor
Bethesda, MD 20814
tel: (800) 344-4823
fax: (301) 951-6378
EIN: 13-1930701

Visit Web Site

Board Leadership

Catherine McCloud
Chair

CEO

Preston W. Campbell, III, M.D.
President & CEO

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