Disable all preview features

Health : Diseases, Disorders, and Disciplines

Alpha-1 Foundation

Giving hope to people living with Alpha-1 around the world

four stars

97.13

3300 Ponce de Leon Boulevard Coral Gables, FL 33134
tel: (877) 228-7321   Web Site
EIN: 65-0585415

Board Leadership
Gordon E. Cadwgan
Chair

CEO
Henry R. Moehring
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 97.13 four stars
  Financial 99.34 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 08/01/2018 and includes data from FY2017, the most recent 990 received at that time.

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. Alpha-1 Antitrypsin (Alpha-1) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. The Foundation has invested more than $71 million to support Alpha-1 Antitrypsin research and programs in 112 institutions in North America, Europe, the Middle East and Australia.

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. Alpha-1 Antitrypsin (Alpha-1) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. The Foundation has invested more than $71 million to support Alpha-1 Antitrypsin research and programs in 112 institutions in North America, Europe, the Middle East and Australia.

Financial

four stars

99.34

Accountability & Transparency

four stars

96.00

This rating was published 08/01/2018 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
82.7%
  Administrative Expenses 8.9%
  Fundraising Expenses 8.2%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 2.60
  Program Expenses Growth 19.2%
  Liabilities to Assets 6.7%
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Alpha-1 Foundation (FL) 97.13 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 93.82 four stars
Angelman Syndrome Foundation (IL) 90.57 four stars
National Down Syndrome Society (NY) 87.28 three stars
Cerebral Palsy Foundation (NY) 91.52 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $8,881,334
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $364,180
Total Contributions $9,245,514
   Program Service Revenue $582,910
Total Primary Revenue $9,828,424
   Other Revenue $1,004,720
TOTAL REVENUE $10,833,144
   
EXPENSES  
   Program Expenses $8,015,517
   Administrative Expenses $881,959
   Fundraising Expenses $860,361
TOTAL FUNCTIONAL EXPENSES $9,757,837
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,075,307
   
Net Assets $24,121,845

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Network $3,752,642 46.8%
Alpha-1 Registry And ACT Trial $787,930 9.8%
Florida Detection Program $353,413 4.4%
Advocacy $341,989 4.3%
Magazine $219,970 2.7%
National Conference $815,260 10.2%
Collaborative Global Network $620,719 7.7%
Communications $375,154 4.7%

Ratings History
Alpha-1 Foundation has received 8 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-06 08/01/2018 97.13 four stars
2016-06 06/01/2017 94.31 four stars
2015-06 07/01/2016 94.30 four stars
2014-06 06/01/2016 91.86 four stars
 
CN 2.0
2014-06 10/01/2015 90.24 four stars
2013-06 08/01/2014 92.71 four stars
2012-06 08/01/2013 92.15 four stars
2011-06 06/01/2012 91.33 four stars
2009-06 09/20/2011 93.75 four stars
 
CN 1.0
2009-06 11/24/2010 88.84 three stars
2008-06 05/01/2009 77.04 two stars
2007-06 02/01/2008 88.37 three stars
2006-06 02/01/2007 77.11 two stars
2005-06 05/01/2006 83.52 three stars
2004-06 09/01/2005 91.96 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 65-0585415
Name in IRS Master File ALPHA-1 FOUNDATION INC
NTEE Code E70
NTEE Classification Public Health Program (Includes General Health and Wellness Promotion
NTEE Type Health - General and Rehabilitative
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1996
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2017
  • June, 2016
  • June, 2015
  • June, 2014
  • June, 2013

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$201,657 2.06% Henry R. Moehring President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Alpha-1 Foundation (FL) 97.13 four stars
National Fragile X Foundation (DC) 93.33 four stars
Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) (NY) 93.82 four stars
Cerebral Palsy Foundation (NY) 91.52 four stars
The Cornelia de Lange Syndrome Foundation (CT) 100.00 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Alpha-1 Foundation
3300 Ponce de Leon Boulevard
Coral Gables, FL 33134
tel: (877) 228-7321
fax: (305) 567-1317
EIN: 65-0585415

Visit Web Site

Board Leadership

Gordon E. Cadwgan
Chair

CEO

Henry R. Moehring
President & CEO

Join Our Mailing List

Join over 400,000 other informed givers and get updates on charity ratings, new features, hot topics, and tips for donating.