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Health : Diseases, Disorders, and Disciplines

Alpha-1 Foundation

Giving hope to people living with Alpha-1 around the world

94.30

3300 Ponce de Leon Boulevard Coral Gables, FL 33134
tel: (877) 228-7321   Web Site
EIN: 65-0585415

Board Leadership
Gordon E. Cadwgan
Chair

CEO
Henry R. Moehring
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 94.30
  Financial 99.02
  Accountability & Transparency 92.00
This rating was published 07/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

99.02

Accountability & Transparency

92.00

This rating was published 07/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
81.6%
  Administrative Expenses 9.3%
  Fundraising Expenses 9.0%
  Fundraising Efficiency $0.08
  Working Capital Ratio (years) 3.45
  Program Expenses Growth 22.6%
  Liabilities to Assets 5.7%
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Alpha-1 Foundation (FL) 94.30
Fanconi Anemia Research Fund (OR) 86.44
National Fragile X Foundation (DC) 89.02
Prader-Willi Syndrome Association (USA) (FL) 86.40
United Cerebral Palsy of Greater Birmingham (AL) 97.73

Compare These Charities (Highly Rated)

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Antitrypsin Deficiency. Alpha-1 Antitrypsin (AAT) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with AAT Deficiency. The Foundation has invested more than $35 million to support Alpha-1 Antitrypsin research and programs in 60 institutions in North America and Europe.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $8,793,784
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $333,707
Total Contributions $9,127,491
   Program Service Revenue $423,431
Total Primary Revenue $9,550,922
   Other Revenue $1,494,811
TOTAL REVENUE $11,045,733
   
EXPENSES  
   Program Expenses $7,063,973
   Administrative Expenses $754,453
   Fundraising Expenses $654,525
TOTAL FUNCTIONAL EXPENSES $8,472,951
   
Payments to Affiliates $0
Excess (or Deficit) for the year $2,572,782
   
Net Assets $22,773,315

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research Network $4,048,280 57.3%
Florida Detection Program $372,843 5.3%
Alpha-1 Registry And ACT Trial $608,001 8.6%

Ratings History
Alpha-1 Foundation has received 6 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-06 07/01/2016 94.30
2014-06 06/01/2016 91.86
 
CN 2.0
2014-06 10/01/2015 90.24
2013-06 08/01/2014 92.71
2012-06 08/01/2013 92.15
2011-06 06/01/2012 91.33
2009-06 09/20/2011 93.75
 
CN 1.0
2009-06 11/24/2010 88.84
2008-06 05/01/2009 77.04
2007-06 02/01/2008 88.37
2006-06 02/01/2007 77.11
2005-06 05/01/2006 83.52
2004-06 09/01/2005 91.96

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 65-0585415
Name in IRS Master File ALPHA-1 FOUNDATION INC
NTEE Code E70
NTEE Classification Public Health Program (Includes General Health and Wellness Promotion
NTEE Type Health - General and Rehabilitative
Classification Educational Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (994) Described in section 170(b)1)(a)(vi) of the Code
(179) Other health services
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date March, 1996
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End June
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • June, 2015
  • June, 2014
  • June, 2013
  • June, 2012
  • June, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
None reported -- John W. Walsh President, CEO
Other Salaries of Note
$173,897 2.05% Marcia F. Ritchie Vice President, Chief Operating Officer

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Antitrypsin Deficiency. Alpha-1 Antitrypsin (AAT) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with AAT Deficiency. The Foundation has invested more than $35 million to support Alpha-1 Antitrypsin research and programs in 60 institutions in North America and Europe.

Highly Rated

Charity Name & State Overall Score Overall Rating
Alpha-1 Foundation (FL) 94.30
Cerebral Palsy, Inc. (WI) 87.81
National Down Syndrome Society (NY) 90.98
Prader-Willi Syndrome Association (USA) (FL) 86.40
National Fragile X Foundation (DC) 89.02

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Alpha-1 Foundation
3300 Ponce de Leon Boulevard
Coral Gables, FL 33134
tel: (877) 228-7321
fax: (305) 567-1317
EIN: 65-0585415

Visit Web Site

Board Leadership

Gordon E. Cadwgan
Chair

CEO

Henry R. Moehring
President & CEO

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