Health : Diseases, Disorders, and Disciplines

Alpha-1 Foundation

Giving hope to people living with Alpha-1 around the world

four stars

93.26

3300 Ponce de Leon Boulevard Coral Gables, FL 33134
tel: (877) 228-7321   Web Site
EIN: 65-0585415

Board Leadership
Jeanine D'Armiento, M.D.
Chair

CEO
Miriam O'Day
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 93.26 four stars
  Financial 91.36 four stars
  Accountability & Transparency 96.00 four stars
This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. Alpha-1 Antitrypsin (Alpha-1) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. The Foundation has invested more than $76 million to support Alpha-1 Antitrypsin research and programs in 112 institutions in North America, Europe, the Middle East and Australia.

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. Alpha-1 Antitrypsin (Alpha-1) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. The Foundation has invested more than $76 million to support Alpha-1 Antitrypsin research and programs in 112 institutions in North America, Europe, the Middle East and Australia.

Impact Information

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Reported Results
Showing 3 of 13
Total in 2018
Average number of dollars given by new donors
197
Number of overall donors
3,881
Number of community events or trainings held and attendance
5,000
Number of conference attendees
683
Number of clients served
7,000
Number of unique website visitors
549,810
Number of clients participating in educational programs
1,342
Number of new donors
2,037
Average online donation
105
Average number of dollars received per donor
150
Number of Facebook followers
12,218
Number of new website visitors
386,526
Number of website pageviews
644,190
This impact information is current as of August 2020, when it was provided to us by GuideStar. At this time, Impact information published on this organization's page has no effect on its rating per our methodology.

Financial

four stars

91.36

Accountability & Transparency

four stars

96.00

This rating was published 07/01/2019 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
81.6%
  Administrative Expenses 9.5%
  Fundraising Expenses 8.8%
  Fundraising Efficiency $0.09
  Working Capital Ratio (years) 2.69
  Program Expenses Growth 1.3%
  Liabilities to Assets 7.5%
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Alpha-1 Foundation on recent 990s filed with the IRS.
REVENUE  
Contributions  
   Contributions, Gifts & Grants $7,665,879
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $3,835
Total Contributions $7,669,714
   Program Service Revenue $532,773
Total Primary Revenue $8,202,487
   Other Revenue $2,429,442
TOTAL REVENUE $10,631,929
   
EXPENSES  
   Program Expenses $7,353,784
   Administrative Expenses $981,696
   Fundraising Expenses $867,507
TOTAL FUNCTIONAL EXPENSES $9,202,987
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,428,942
   
Net Assets $25,603,799

Charts

Compensation % of Expenses Paid to Title
$303,453 3.29% Henry R. Moehring President, CEO

Mission

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. Alpha-1 Antitrypsin (Alpha-1) Deficiency is a hereditary condition which may result in serious lung disease in adults and/or liver disease in infants, children and adults. The Foundation has realized continuous growth since its inception in 1995 and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Alpha-1. The Foundation has invested more than $76 million to support Alpha-1 Antitrypsin research and programs in 112 institutions in North America, Europe, the Middle East and Australia.

Highly Rated

Charity Name & State Overall Score Overall Rating
Alpha-1 Foundation (FL) 93.26 four stars
National Fragile X Foundation (DC) 94.84 four stars
The Progeria Research Foundation (MA) 91.57 four stars
The Cornelia de Lange Syndrome Foundation (CT) 96.66 four stars
Cerebral Palsy (WI) 85.83 three stars

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Charity Contact Info

Alpha-1 Foundation
3300 Ponce de Leon Boulevard
Coral Gables, FL 33134
tel: (877) 228-7321
fax: (305) 567-1317
EIN: 65-0585415

Visit Web Site

Board Leadership

Jeanine D'Armiento, M.D.
Chair

CEO

Miriam O'Day
President & CEO