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Health : Diseases, Disorders, and Disciplines

ALS Association Minnesota/North Dakota/South Dakota Chapter

Create a world without ALS

three stars

86.55

1919 University Ave W, Suite Suite 175
St. Paul, MN 55104
tel: (612) 672-0484   Web Site
EIN: 41-1756085

Board Leadership
Philip Albert
President

CEO
Jen Hjelle
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 86.55 three stars
  Financial 81.41 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 04/01/2021 and includes data from FY2020, the most recent 990 received at that time.

The ALS Association is the only not-for-profit voluntary health organization dedicated solely to the fight against ALS. The Minnesota Chapter was incorporated in 1993 when patients, families and related professionals banded together to share in their struggle with this tragic disease and to provide care services, community education and support of national research. We currently serve the states of Minnesota, North Dakota, and South Dakota. We work together with the National Office to accomplish our mission. The MN/ND/SD focuses primarily on helping local families live with ALS while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials.

The ALS Association is the only not-for-profit voluntary health organization dedicated solely to the fight against ALS. The Minnesota Chapter was incorporated in 1993 when patients, families and related professionals banded together to share in their struggle with this tragic disease and to provide care services, community education and support of national research. We currently serve the states of Minnesota, North Dakota, and South Dakota. We work together with the National Office to accomplish our mission. The MN/ND/SD focuses primarily on helping local families live with ALS while the National Office focuses primarily on research and advocacy. The Chapter supports the National Office through revenue sharing and research contributions. The National Office supports the Chapters by providing up-to-date information and materials.

Financial

three stars

81.41

Accountability & Transparency

four stars

96.00

This rating was published 04/01/2021 and includes data from FY2020, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.1%
  Administrative Expenses 8.2%
  Fundraising Expenses 14.6%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.99
  Program Expenses Growth 2.7%
  Liabilities to Assets 15.8%
All data for Financial Performance Metrics calculations was provided by ALS Association Minnesota/North Dakota/South Dakota Chapter on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by ALS Association Minnesota/North Dakota/South Dakota Chapter on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 86.55 three stars
The ALS Association Connecticut Chapter (CT) 90.79 four stars
The ALS Association Golden West Chapter (CA) 93.56 four stars
The ALS Association, Greater Philadelphia Chapter (PA) 88.53 three stars
ALS Therapy Development Institute (MA) 92.10 four stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,110,472
   Federated Campaigns $0
   Membership Dues $0
   Fundraising Events $1,590,407
   Related Organizations $0
   Government Grants $0
Total Contributions $3,700,879
   Program Service Revenue $0
Total Primary Revenue $3,700,879
   Other Revenue $-21,090
TOTAL REVENUE $3,679,789
   
EXPENSES  
   Program Expenses $3,215,864
   Administrative Expenses $400,167
   Fundraising Expenses $633,759
TOTAL FUNCTIONAL EXPENSES $4,249,790
   
Payments to Affiliates $293,203
Excess (or Deficit) for the year $-570,001
   
Net Assets $4,303,341

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Care Services $2,406,103 74.8%
Public Awareness $434,582 13.5%
Research $375,179 11.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2020-01 04/01/2021 86.55 three stars
2019-01 03/01/2020 91.65 four stars
2018-01 03/01/2019 88.65 three stars
2017-01 03/01/2018 89.98 three stars
2016-01 05/01/2017 89.50 three stars
2015-01 06/01/2016 92.85 four stars
 
CN 2.0
2015-01 11/01/2015 94.28 four stars
2014-01 09/01/2015 87.52 three stars
2013-01 02/01/2014 91.16 four stars
2012-01 11/06/2012 87.46 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 41-1756085
Name in IRS Master File AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
NTEE Code [Not Provided by IRS]
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (123) Discussion groups, forums, panels lectures, etc.
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Subordinate - the organization is a subordinate in a group ruling.
Group Name AMYOTROPHIC LATERAL SCLEROSIS ASSN
Ruling Date July, 1990
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End January
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • January, 2019
  • January, 2018
  • January, 2017
  • January, 2016
  • January, 2015
Compensation % of Expenses Paid to Title
$144,099 3.39% Jennifer Hjelle Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
ALS Association Minnesota/North Dakota/South Dakota Chapter (MN) 86.55 three stars
The ALS Association Florida Chapter (FL) 87.47 three stars
The ALS Association, National Office (VA) 92.23 four stars
The ALS Association Greater New York Chapter (NY) 96.66 four stars
The ALS Association Connecticut Chapter (CT) 90.79 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

ALS Association Minnesota/North Dakota/South Dakota Chapter
1919 University Ave W, Suite
Suite 175
St. Paul, MN 55104
tel: (612) 672-0484
fax: (612) 672-9110
EIN: 41-1756085

Visit Web Site

Board Leadership

Philip Albert
President

CEO

Jen Hjelle
Executive Director

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