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Health : Diseases, Disorders, and Disciplines

The Myositis Association

Finding a cure for inflammatory and other related myopathies

four stars

97.05

1737 King Street Suite 600
Alexandria, VA 22314
tel: (800) 821-7356   Web Site
EIN: 54-1660976

Board Leadership
John McClun
Chair

CEO
Mary McGowan
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 97.05 four stars
  Financial 95.84 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 04/01/2019 and includes data from FY2017, the most recent 990 received at that time.

Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

Impact Information

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Financial

four stars

95.84

Accountability & Transparency

four stars

100.00

This rating was published 04/01/2019 and includes data from FY2017, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
79.2%
  Administrative Expenses 10.9%
  Fundraising Expenses 9.7%
  Fundraising Efficiency $0.10
  Working Capital Ratio (years) 1.68
  Program Expenses Growth 10.5%
  Liabilities to Assets 2.1%
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 97.05 four stars
The Glaucoma Foundation (NY) 87.48 three stars
Cystic Fibrosis Research, Inc. (CA) 100.00 four stars
Jeffrey Modell Foundation (NY) 93.94 four stars
Hydrocephalus Association (MD) 86.21 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,286,896
   Federated Campaigns $29,198
   Membership Dues $0
   Fundraising Events $145,916
   Related Organizations $0
   Government Grants $16,266
Total Contributions $1,478,276
   Program Service Revenue $148,216
Total Primary Revenue $1,626,492
   Other Revenue $131,498
TOTAL REVENUE $1,757,990
   
EXPENSES  
   Program Expenses $1,413,122
   Administrative Expenses $147,872
   Fundraising Expenses $192,130
TOTAL FUNCTIONAL EXPENSES $1,753,124
   
Payments to Affiliates $0
Excess (or Deficit) for the year $4,866
   
Net Assets $2,650,851

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grants $623,642 44.1%
Annual Patient Conference $492,512 34.8%
Education $160,579 11.4%

Ratings History
The Myositis Association has received 4 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2017-12 04/01/2019 97.05 four stars
2016-12 06/01/2018 98.66 four stars
2015-12 05/01/2017 96.06 four stars
2014-12 03/01/2017 93.35 four stars
2014-12 06/01/2016 92.77 four stars
 
CN 2.0
2014-12 04/01/2016 96.78 four stars
2013-12 06/01/2015 89.28 three stars
2012-12 03/01/2014 85.23 three stars
2011-12 12/20/2012 80.66 three stars
2010-12 02/01/2012 74.71 two stars
2009-12 09/20/2011 75.91 two stars
 
CN 1.0
2009-12 05/01/2011 61.79 one star
2008-12 07/01/2010 85.17 three stars
2007-12 05/01/2009 87.87 three stars
2006-12 04/01/2008 79.32 two stars
2005-12 03/01/2007 62.58 one star
2004-12 04/01/2006 78.36 two stars
2003-12 09/01/2005 86.56 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 54-1660976
Name in IRS Master File MYOSITIS ASSOCIATION
NTEE Code P82
NTEE Classification Developmentally Disabled Centers, Services
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1993
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
Compensation % of Expenses Paid to Title
$195,173 11.13% Robert Goldberg Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 97.05 four stars
Hemophilia Federation of America (DC) 96.46 four stars
National Hemophilia Foundation (NY) 94.84 four stars
NEXT for AUTISM (NY) 87.68 three stars
Massachusetts Down Syndrome Congress (MA) 89.75 three stars

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Charity Contact Info

The Myositis Association
1737 King Street
Suite 600
Alexandria, VA 22314
tel: (800) 821-7356
fax: (703) 535-6752
EIN: 54-1660976

Visit Web Site

Board Leadership

John McClun
Chair

CEO

Mary McGowan
Executive Director

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