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Health : Diseases, Disorders, and Disciplines

The Myositis Association

Finding a cure for inflammatory and other related myopathies

four stars

98.66

1737 King Street Suite 600
Alexandria, VA 22314
tel: (800) 821-7356   Web Site
EIN: 54-1660976

Board Leadership
John McClun
Chair

CEO
Bob Goldberg
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 98.66 four stars
  Financial 98.11 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 06/01/2018 and includes data from FY2016, the most recent 990 received at that time.

Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

Financial

four stars

98.11

Accountability & Transparency

four stars

100.00

This rating was published 06/01/2018 and includes data from FY2016, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
78.4%
  Administrative Expenses 12.6%
  Fundraising Expenses 8.9%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 1.77
  Program Expenses Growth 19.8%
  Liabilities to Assets 2.2%
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 98.66 four stars
The Glaucoma Foundation (NY) 87.48 three stars
International OCD Foundation (MA) 85.84 three stars
Glaucoma Research Foundation (CA) 92.44 four stars
American Brain Tumor Association (IL) 89.86 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,117,659
   Federated Campaigns $11,337
   Membership Dues $0
   Fundraising Events $69,395
   Related Organizations $0
   Government Grants $101,487
Total Contributions $1,299,878
   Program Service Revenue $65,220
Total Primary Revenue $1,365,098
   Other Revenue $34,115
TOTAL REVENUE $1,399,213
   
EXPENSES  
   Program Expenses $1,234,751
   Administrative Expenses $181,161
   Fundraising Expenses $128,662
TOTAL FUNCTIONAL EXPENSES $1,544,574
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-145,361
   
Net Assets $2,547,571

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grants $504,565 40.9%
Annual Patient Conference $463,883 37.6%
Education $156,905 12.7%

Ratings History
The Myositis Association has received 3 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2016-12 06/01/2018 98.66 four stars
2015-12 05/01/2017 96.06 four stars
2014-12 03/01/2017 93.35 four stars
2014-12 06/01/2016 92.77 four stars
 
CN 2.0
2014-12 04/01/2016 96.78 four stars
2013-12 06/01/2015 89.28 three stars
2012-12 03/01/2014 85.23 three stars
2011-12 12/20/2012 80.66 three stars
2010-12 02/01/2012 74.71 two stars
2009-12 09/20/2011 75.91 two stars
 
CN 1.0
2009-12 05/01/2011 61.79 one star
2008-12 07/01/2010 85.17 three stars
2007-12 05/01/2009 87.87 three stars
2006-12 04/01/2008 79.32 two stars
2005-12 03/01/2007 62.58 one star
2004-12 04/01/2006 78.36 two stars
2003-12 09/01/2005 86.56 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 54-1660976
Name in IRS Master File MYOSITIS ASSOCIATION
NTEE Code P82
NTEE Classification Developmentally Disabled Centers, Services
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1993
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2016
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

Compensation % of Expenses Paid to Title
$195,173 12.63% Robert Goldberg Executive Director

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 98.66 four stars
American Brain Tumor Association (IL) 89.86 three stars
Childhood Apraxia of Speech Association of North America (Apraxia Kids) (PA) 92.22 four stars
Histiocytosis Association (NJ) 89.69 three stars
Tuberous Sclerosis Alliance (MD) 93.40 four stars

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Charity Contact Info

The Myositis Association
1737 King Street
Suite 600
Alexandria, VA 22314
tel: (800) 821-7356
fax: (703) 535-6752
EIN: 54-1660976

Visit Web Site

Board Leadership

John McClun
Chair

CEO

Bob Goldberg
Executive Director

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