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Health : Diseases, Disorders, and Disciplines

The Myositis Association

Finding a cure for inflammatory and other related myopathies

four stars

96.06

1737 King Street Suite 600
Alexandria, VA 22314
tel: (800) 821-7356   Web Site
EIN: 54-1660976

Board Leadership
Terry Anderson
Chair

CEO
Bob Goldberg
Executive Director

  Score
(out of 100)
Rating
Overall Score & Rating 96.06 four stars
  Financial 94.44 four stars
  Accountability & Transparency 100.00 four stars
This rating was published 05/01/2017 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

four stars

94.44

Accountability & Transparency

four stars

100.00

This rating was published 05/01/2017 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
74.3%
  Administrative Expenses 14.6%
  Fundraising Expenses 10.9%
  Fundraising Efficiency $0.07
  Working Capital Ratio (years) 2.03
  Program Expenses Growth 23.9%
  Liabilities to Assets 3.3%
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by The Myositis Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 96.06 four stars
Epilepsy Foundation of Texas (TX) 92.38 four stars
Hemophilia Federation of America (DC) 88.71 three stars
Organization for Autism Research (VA) 95.95 four stars
Doug Flutie Jr. Foundation For Autism (MA) 93.33 four stars

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Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,162,355
   Federated Campaigns $10,868
   Membership Dues $0
   Fundraising Events $93,884
   Related Organizations $0
   Government Grants $181,582
Total Contributions $1,448,689
   Program Service Revenue $66,855
Total Primary Revenue $1,515,544
   Other Revenue $14,765
TOTAL REVENUE $1,530,309
   
EXPENSES  
   Program Expenses $1,058,264
   Administrative Expenses $184,529
   Fundraising Expenses $135,597
TOTAL FUNCTIONAL EXPENSES $1,378,390
   
Payments to Affiliates $0
Excess (or Deficit) for the year $151,919
   
Net Assets $2,602,515

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Grants $471,346 44.5%
Education $330,127 31.2%
Annual Patient Conference $166,017 15.7%

Ratings History
The Myositis Association has received 2 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 05/01/2017 96.06 four stars
2014-12 03/01/2017 93.35 four stars
2014-12 06/01/2016 92.77 four stars
 
CN 2.0
2014-12 04/01/2016 96.78 four stars
2013-12 06/01/2015 89.28 three stars
2012-12 03/01/2014 85.23 three stars
2011-12 12/20/2012 80.66 three stars
2010-12 02/01/2012 74.71 two stars
2009-12 09/20/2011 75.91 two stars
 
CN 1.0
2009-12 05/01/2011 61.79 one star
2008-12 07/01/2010 85.17 three stars
2007-12 05/01/2009 87.87 three stars
2006-12 04/01/2008 79.32 two stars
2005-12 03/01/2007 62.58 one star
2004-12 04/01/2006 78.36 two stars
2003-12 09/01/2005 86.56 three stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 54-1660976
Name in IRS Master File MYOSITIS ASSOCIATION
NTEE Code P82
NTEE Classification Developmentally Disabled Centers, Services
NTEE Type Human Services - Multipurpose and Other
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date August, 1993
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$195,173 14.15% Robert Goldberg Executive Director

Founded in 1993, the mission of The Myositis Association (TMA) is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. The aim of TMA's programs and services is to provide information, support, advocacy and research for those concerned about myositis. Myositis is the general term for swelling of the muscles. Inflammatory myopathies are thought to be autoimmune diseases, meaning the body's immune system, which normally fights infections and viruses, is misdirected and attacks the body's own normal, healthy tissue through inflammation, or swelling.

Highly Rated

Charity Name & State Overall Score Overall Rating
The Myositis Association (VA) 96.06 four stars
National Ataxia Foundation (MN) 90.71 four stars
Dan Marino Foundation (FL) 92.24 four stars
Childhood Apraxia of Speech Association of North America (PA) 92.22 four stars
Huntington's Disease Society of America (NY) 91.37 four stars

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Charity Contact Info

The Myositis Association
1737 King Street
Suite 600
Alexandria, VA 22314
tel: (800) 821-7356
fax: (703) 535-6752
EIN: 54-1660976

Visit Web Site

Board Leadership

Terry Anderson
Chair

CEO

Bob Goldberg
Executive Director

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