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Health : Diseases, Disorders, and Disciplines

Spina Bifida Association

Promoting the prevention of spina bifida and enhancing the lives of all affected

three stars

85.88

1600 Wilson Boulevard Suite 800
Arlington, VA 22209
tel: (202) 944-3285   Web Site
EIN: 58-1342181

Board Leadership
Nicole Gower
Chair

CEO
Sara Struwe
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 85.88 three stars
  Financial 80.45 three stars
  Accountability & Transparency 96.00 four stars
This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of spina bifida. Spina bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of spina bifida. Spina bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.

Impact Information

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GlobalGiving Status
Partner Status
This organization holds GlobalGiving Partner Status. GG Rewards is the system GlobalGiving uses to reward nonprofits that demonstrate listening to the people they serve, learning, and improving their impact. Organizations receive points which translate into their Status: 52% of organizations are Partner, 22% are Leader, and the top 26% of organizations are Superstar. GlobalGiving is a trusted Impact Information partner of Charity Navigator.
Additional Badges from GlobalGiving
Vetted
This organization has been vetted by GlobalGiving.
This impact information is current as of August 2020, when it was provided to us by GlobalGiving. At this time, Impact information published on this organization's page has no effect on its rating per our methodology. Further, the availability of GG Rewards information for charities on our site has no effect on Charity Navigator's evaluation of GlobalGiving.

Financial

three stars

80.45

Accountability & Transparency

four stars

96.00

This rating was published 03/01/2020 and includes data from FY2018, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
77.3%
  Administrative Expenses 9.2%
  Fundraising Expenses 13.4%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.92
  Program Expenses Growth 1.7%
  Liabilities to Assets 12.8%
All data for Financial Performance Metrics calculations was provided by Spina Bifida Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Spina Bifida Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Spina Bifida Association (VA) 85.88 three stars
The Progeria Research Foundation (MA) 91.57 four stars
The Cornelia de Lange Syndrome Foundation (CT) 96.66 four stars
Fanconi Anemia Research Fund (OR) 97.25 four stars
United Ability (AL) 95.72 four stars

Compare These Charities (Highly Rated)

REVENUE  
Contributions  
   Contributions, Gifts & Grants $2,070,214
   Federated Campaigns $134,106
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $701,234
Total Contributions $2,905,554
   Program Service Revenue $42,918
Total Primary Revenue $2,948,472
   Other Revenue $3,708
TOTAL REVENUE $2,952,180
   
EXPENSES  
   Program Expenses $1,369,272
   Administrative Expenses $214,708
   Fundraising Expenses $256,177
TOTAL FUNCTIONAL EXPENSES $1,840,157
   
Payments to Affiliates $0
Excess (or Deficit) for the year $1,112,023
   
Net Assets $1,763,040

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research and Clinical Care $709,216 51.8%
Member Services & Chapter Development $227,581 16.6%
Education $199,185 14.5%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2018-12 03/01/2020 85.88 three stars
2017-12 04/01/2019 82.11 three stars
2016-12 03/01/2018 80.58 three stars
2015-12 02/01/2017 74.96 two stars
2014-12 06/01/2016 77.27 two stars
 
CN 2.0
2014-12 12/22/2015 76.03 two stars
2013-12 05/01/2015 72.82 two stars
2012-12 11/01/2013 78.36 two stars
2011-12 09/01/2012 84.58 three stars
2010-12 12/23/2011 92.56 four stars
2009-12 09/20/2011 93.40 four stars
 
CN 1.0
2009-12 02/01/2011 91.43 four stars
2008-12 06/01/2010 95.48 four stars
2007-12 02/01/2009 90.24 four stars
2006-03 02/01/2007 95.93 four stars
2005-03 01/01/2006 93.19 four stars
2004-03 09/01/2005 93.38 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 58-1342181
Name in IRS Master File SPINA BIFIDA ASSOCIATION OF AMERICA
NTEE Code G55
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
(179) Other health services
Foundation Status Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes.  509(a)(2)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date December, 1973
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$132,012 7.17% Sara Struwe President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Spina Bifida Association (VA) 85.88 three stars
The Cornelia de Lange Syndrome Foundation (CT) 96.66 four stars
Alpha-1 Foundation (FL) 93.26 four stars
Prader-Willi Syndrome Association (USA) (FL) 88.00 three stars
Fanconi Anemia Research Fund (OR) 97.25 four stars

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Spina Bifida Association
1600 Wilson Boulevard
Suite 800
Arlington, VA 22209
tel: (202) 944-3285
fax: (202) 944-3295
EIN: 58-1342181

Visit Web Site

Board Leadership

Nicole Gower
Chair

CEO

Sara Struwe
President, CEO

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