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Health : Diseases, Disorders, and Disciplines

Spina Bifida Association

Promoting the prevention of spina bifida and enhancing the lives of all affected

three stars

84.43

1600 Wilson Boulevard Suite 800
Arlington, VA 22209
tel: (202) 944-3285   Web Site
EIN: 58-1342181

Board Leadership
Nicole Gower
Chair

CEO
Sara Struwe
President, CEO

  Score
(out of 100)
Rating
Overall Score & Rating 84.43 three stars
  Financial 78.35 two stars
  Accountability & Transparency 96.00 four stars
This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of spina bifida. Spina bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.

The Spina Bifida Association (SBA) serves adults and children who live with the challenges of spina bifida. Spina bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.

Financial

two stars

78.35

Accountability & Transparency

four stars

96.00

This rating was published 06/01/2021 and includes data from FY2019, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity's total expenses spent on the programs
and services it delivers)
75.3%
  Administrative Expenses 10.8%
  Fundraising Expenses 13.7%
  Fundraising Efficiency $0.13
  Working Capital Ratio (years) 0.71
  Program Expenses Growth 0.1%
  Liabilities to Assets 16.1%
All data for Financial Performance Metrics calculations was provided by Spina Bifida Association on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by Spina Bifida Association on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
Spina Bifida Association (VA) 84.43 three stars
The Cornelia de Lange Syndrome Foundation (CT) 95.33 four stars
National Down Syndrome Society (NY) 94.37 four stars
Fanconi Anemia Research Fund (OR) 94.94 four stars
National Fragile X Foundation (VA) 86.92 three stars

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REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,035,922
   Federated Campaigns $31,177
   Membership Dues $0
   Fundraising Events $0
   Related Organizations $0
   Government Grants $651,206
Total Contributions $1,718,305
   Program Service Revenue $111,811
Total Primary Revenue $1,830,116
   Other Revenue $23,889
TOTAL REVENUE $1,854,005
   
EXPENSES  
   Program Expenses $1,613,030
   Administrative Expenses $295,094
   Fundraising Expenses $323,940
TOTAL FUNCTIONAL EXPENSES $2,232,064
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-378,059
   
Net Assets $1,409,240

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research and Clinical Care $764,127 47.4%
Education $307,124 19.0%
Member Services & Chapter Development $301,155 18.7%

Ratings History

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2019-12 06/01/2021 84.43 three stars
2018-12 03/01/2020 85.88 three stars
2017-12 04/01/2019 82.11 three stars
2016-12 03/01/2018 80.58 three stars
2015-12 02/01/2017 74.96 two stars
2014-12 06/01/2016 77.27 two stars
 
CN 2.0
2014-12 12/22/2015 76.03 two stars
2013-12 05/01/2015 72.82 two stars
2012-12 11/01/2013 78.36 two stars
2011-12 09/01/2012 84.58 three stars
2010-12 12/23/2011 92.56 four stars
2009-12 09/20/2011 93.40 four stars
 
CN 1.0
2009-12 02/01/2011 91.43 four stars
2008-12 06/01/2010 95.48 four stars
2007-12 02/01/2009 90.24 four stars
2006-03 02/01/2007 95.93 four stars
2005-03 01/01/2006 93.19 four stars
2004-03 09/01/2005 93.38 four stars

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 58-1342181
Name in IRS Master File SPINA BIFIDA ASSOCIATION OF AMERICA
NTEE Code G55
NTEE Classification [Not Provided by IRS]
NTEE Type [Not Provided by IRS]
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (160) Aid to the handicapped (see also 031)
(179) Other health services
Foundation Status Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes.  509(a)(2)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date December, 1973
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2018
  • December, 2017
  • December, 2016
  • December, 2015
  • December, 2014
Compensation % of Expenses Paid to Title
$140,400 6.29% Sara Struwe President, CEO

Highly Rated

Charity Name & State Overall Score Overall Rating
Spina Bifida Association (VA) 84.43 three stars
National Down Syndrome Society (NY) 94.37 four stars
National Fragile X Foundation (VA) 86.92 three stars
United Ability (AL) 96.15 four stars
MiracleFeet (NC) 96.99 four stars

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This charity has an official representative registered with Charity Navigator.

Charity Contact Info

Spina Bifida Association
1600 Wilson Boulevard
Suite 800
Arlington, VA 22209
tel: (202) 944-3285
fax: (202) 944-3295
EIN: 58-1342181

Visit Web Site

Board Leadership

Nicole Gower
Chair

CEO

Sara Struwe
President, CEO

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