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Health : Diseases, Disorders, and Disciplines

FSH Society

Facioscapulohumeral muscular dystrophy

98.23

450 Bedford Street Lexington, MA 02420
tel: (781) 301-6060   Web Site
EIN: 52-1762747

Board Leadership
William R. Lewis, Sr.
Chairman of the Board

CEO
Daniel Paul Perez
President & CEO

  Score
(out of 100)
Rating
Overall Score & Rating 98.23
  Financial 97.50
  Accountability & Transparency 100.00
This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.

Learn more about how we calculate the overall score and rating.

Financial

97.50

Accountability & Transparency

100.00

This rating was published 12/01/2016 and includes data from FY2015, the most recent 990 received at that time.
Overall Rating Chart
  Program Expenses
(Percent of the charity’s total expenses spent on the programs
and services it delivers)
88.0%
  Administrative Expenses 7.2%
  Fundraising Expenses 4.7%
  Fundraising Efficiency $0.03
  Working Capital Ratio (years) 1.84
  Program Expenses Growth 15.9%
  Liabilities to Assets 12.6%
All data for Financial Performance Metrics calculations was provided by FSH Society on recent 990s filed with the IRS.
All data for Financial Performance Metrics calculations was provided by FSH Society on recent 990s filed with the IRS.

Highly Rated

Charity Name & State Overall Score Overall Rating
FSH Society (MA) 98.23
Osteogenesis Imperfecta Foundation (MD) 91.36
SPD Foundation (CO) 86.84
Cystic Fibrosis Foundation (MD) 94.63
Charcot-Marie-Tooth Association (PA) 87.18

Compare These Charities (Highly Rated)

The FHS Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSH Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

REVENUE  
Contributions  
   Contributions, Gifts & Grants $1,538,989
   Federated Campaigns $20,779
   Membership Dues $0
   Fundraising Events $459,094
   Related Organizations $0
   Government Grants $0
Total Contributions $2,018,862
   Program Service Revenue $0
Total Primary Revenue $2,018,862
   Other Revenue $8,808
TOTAL REVENUE $2,027,670
   
EXPENSES  
   Program Expenses $1,531,275
   Administrative Expenses $162,224
   Fundraising Expenses $102,858
TOTAL FUNCTIONAL EXPENSES $1,796,357
   
Payments to Affiliates $0
Excess (or Deficit) for the year $231,313
   
Net Assets $2,942,234

Program names and associated costs are listed for the top programs as reported on the charity's most recently filed Form 990. The top programs displayed will include the largest three programs, or those programs covering at least 60% of the charity's total expenses, whichever comes first.

Program Name Amount Spent % of Program Expenses
Research $1,126,105 73.5%
Meetings, Symposiums, and Workshops $268,992 17.6%
Education, Advocacy, and Community Action $136,178 8.9%

Ratings History
FSH Society has received 9 consecutive 4-star ratings from Charity Navigator.

Form 990 FYE Date Published Overall Score Overall Rating
CN 2.1
2015-12 12/01/2016 98.23
2014-12 06/01/2016 98.23
 
CN 2.0
2014-12 12/01/2015 99.40
2013-12 07/01/2015 99.10
2013-12 06/01/2015 97.03
2012-12 04/01/2014 98.40
2011-12 04/01/2013 98.50
2010-12 03/01/2012 96.82
2009-12 09/20/2011 94.85
 
CN 1.0
2009-12 05/01/2011 98.02
2008-12 07/01/2010 90.05
2007-12 05/01/2009 97.93
2006-12 05/01/2008 84.19
2005-12 10/01/2006 82.41
2004-12 11/01/2005 88.27

The data displayed on this tab is provided by the IRS in the form of Publication 78 and the Business Master File (BMF).

EIN 52-1762747
Name in IRS Master File FACIOSCAPULOHUMERAL SOCIETY
NTEE Code H20
NTEE Classification Birth Defects, Genetic Diseases Research
NTEE Type Medical Research
Classification Charitable Organization
Subsection 501(c)(3)  (View the list of codes)
Activities (161) Scientific research (diseases)
Foundation Status Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi)
Deductibility Contributions are deductible
Affiliation Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Group Name [Not Applicable]
Ruling Date February, 1992
Filing Requirement 990 (all other) or 990EZ return
Fiscal Year End December
IRS Forms 990
(provided courtesy of Foundation Center)
(Log In or Register Now to View Forms 990!)
  • December, 2015
  • December, 2014
  • December, 2013
  • December, 2012
  • December, 2011

The data displayed in this profile is provided by the IRS for free in the form of Publication 78 and the Business Master File (BMF).

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Compensation % of Expenses Paid to Title
$152,029 8.46% Daniel P. Perez President, CEO
Other Salaries of Note
$141,222 7.86% June Kinoshita Executive Director

The FHS Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSH Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

Highly Rated

Charity Name & State Overall Score Overall Rating
FSH Society (MA) 98.23
Charcot-Marie-Tooth Association (PA) 87.18
Hunter's Hope Foundation (NY) 93.80
Restless Legs Syndrome Foundation (TX) 89.27
Parent Project Muscular Dystrophy (NJ) 91.66

Compare These Charities (Highly Rated)

This charity has an official representative registered with Charity Navigator.

Charity Contact Info

FSH Society
450 Bedford Street
Lexington, MA 02420
tel: (781) 301-6060
fax: (781) 862-1116
EIN: 52-1762747

Visit Web Site

Board Leadership

William R. Lewis, Sr.
Chairman of the Board

CEO

Daniel Paul Perez
President & CEO

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