Vision

To create an empowered and engaged Turner syndrome community.

Goals

1. 1.Modernizing Support & Community Engagement TSSUS will expand how the community connects by using video, visual media, and interactive online events. Community stories, lived experiences, and topic-specific virtual calls will create more engaging ways for individuals and families affected by Turner syndrome to learn, share, and support one another.
2. 2.Advancing Knowledge by Improving Information Organization TSSUS will make information easier to find by launching monthly educational themes on key TS topics and improving the website structure. Resources will be organized by age group and life stage, helping individuals and families quickly locate the information most relevant to their needs.
3. 3.Strengthening Research Participation TSSUS will encourage greater participation in the TS Research Registry to help advance knowledge and improve care. Monthly research updates will keep the community informed, while partnerships with NASCARR and other national collaborators will support stronger research efforts and new discoveries.