Vision

Individuals and families need and deserve opportunities to be active participants in health, from services in traditional health settings to groundbreaking research endeavors. Genetic Alliance is resolute that people come first. We partner with individuals and communities to transform health systems to respond to what people most need. We convene powerful networks, deliver actionable information, build intuitive tools, and drive policy decisions.

Goals

1. 1.More than 250 million children in the world have an undiagnosed genetic condition. Currently at 500 children a year, to offer genomic sequencing to 50,000 children a year around the world, specifically in LMIC by 2029. To enable the sequencing to be done in those countries in which the children reside, thereby increasing the clinician's capacity.
2. 2.To offer support to the families of the children entering iHope Genetic Health. At present, few of these families receive peer to peer support, matching to available medicines, advocacy for access to inaccessible medicines, connections to clinical trials, and the creation of trials where they do not exist.
3. 3.In the shift from being heavily federally funded pre-pandemic, we must now find funders who realize the importance of the infrastructure we provide to networks of support groups, the need to diagnose the more than 250 million children in the world who are undiagnosed, and the importance of organizations that are "home to the whole".