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    FSHD Society

    Mission

    The FSHD Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSHD Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

    Randolph MA | EIN: 52-1762747
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    75 North Main Street, Suite 1073,
    Randolph MA 02368
    https://www.fshdsociety.org
    781-301-6060

    FSHD Society

    Mission

    The FSHD Society is the world's largest and most progressive grassroots network of facioscapulohumeral muscular dystrophy (FSHD) patients, their families and research activists. We are solely dedicated to treating and curing FSHD through basic, translational and clinical research. We empower scientists by ensuring access to patients, resources and funds for FSHD research and development. The FSHD Society empowers patients by ensuring them a voice to convey what it is like to live with muscular dystrophy. We engage and support tens of thousands of patients and their families and friends in thousands of communities worldwide. FSHD is one of the nine primary types of muscular dystrophy, with a major symptom of the progressive weakening and loss of skeletal muscles.

    Randolph MA | EIN: 52-1762747
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    75 North Main Street, Suite 1073,
    Randolph MA 02368
    https://www.fshdsociety.org
    781-301-6060

    Beacon Report

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    • Additional Information
    Accountability Panel
    ScoreMetric
    100%
    Website Reported on Tax Form:Yes
    100%
    No Material Diversion of Assets:Yes
    100%
    Financial Statements:Yes
    100%
    Audit Oversight Committee:Yes
    100%
    No Loans Reported To or From Officers:Yes
    100%
    Records Retention Policy:Yes
    100%
    Tax Form Disclosed on Website:Yes
    Science behind the numbers(opens in new tab)