Charity Navigator's ratings previously did not consider Leadership & Adaptability, Culture & Community, or Impact & Measurement. The historic rating mainly reflects a version of today’s Accountability and Finance score. More information on our previous rating methodologies can be found on our rating methodology page.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
Majority Independent Board Members - 100% independent members
10 out of 10 points
Industry professionals strongly recommend an independent governing body to allow for full deliberation and diversity of thinking on governance and other organizational matters. We check to see that a majority of board members are identified as independent on their tax form.
Source: IRS Form 990
Independent Board Size - 9 independent members
10 out of 10 points
Industry professionals strongly recommend an independent governing body to allow for full deliberation and diversity of thinking on governance and other organizational matters. For most organizations, we check to see if the organization has at least three independent board members. For large, donor-funded organizations, we check to see if the organization has at least five independent board members
Source: IRS Form 990
Material Diversion of Assets - None
10 out of 10 points
A diversion of assets — any unauthorized conversion or use of the organization's assets other than for the organization's authorized purposes, including but not limited to embezzlement or theft — also can seriously call into question a charity's financial integrity. We review the charity's most recent IRS Form 990 to see if the charity has reported any diversion of assets.
Source: IRS Form 990
Tax Form Disclosures and Policies
Full Credit
Partial Credit
No Credit
Website Listed on Tax Form - Listed
3 out of 3 points
Charity Navigator looks for a website on the IRS Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Conflict of Interest Policy - Missing
0 out of 7 points
Charity Navigator looks for the existence of a conflict of interest policy on the IRS Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Whistleblower Policy - Missing
0 out of 7 points
Charity Navigator looks for the existence of a whistleblower policy per the IRS Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Document Retention and Destruction - Missing
0 out of 7 points
Charity Navigator looks for the existence of a document retention and destruction policy per the IRS Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Documents Board Meeting Minutes - Yes
3 out of 3 points
Charity Navigator looks to confirm on the IRS Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Website Disclosures
Full Credit
Partial Credit
No Credit
Form 990 indicates tax form is available on nonprofit's website - No
0 out of 3 points
For almost all charities, we check the charity's IRS Form 990 to see if it discloses that the Form 990 is available on the charity's website. As with the audited financial statement, donors need easy access to this financial report to help determine if the organization is managing its financial resources well.
Source: IRS Form 990
Financial Metrics
Full Credit
Partial Credit
No Credit
Liabilities to Assets Ratio: 1.36%
15 out of 15 points
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent IRS Form 990). This ratio is an indicator of an organization's solvency and/or long-term sustainability.
Source: IRS Form 990
Program Expense Ratio: 97.43%
25 out of 25 points
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three IRS Forms 990). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
Source: IRS Form 990
Additional Information
Total Revenue and Expenses - Data Available
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
Click or hover over the bar to see exact $ amount
Salary of Key Persons - Data Available
The compensation data below shows the five highest paid individuals at this charity. The amount includes salary, cash bonuses, and compensation from related organizations. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2.
Andrea Bischoff, Board Member
$0
Amann Islam, Board Member
$0
Cristy Phillips, Board Member
$0
Matthew Rogers, Board Member
$0
Merilee Vance, Board Member
$0
Source: IRS Form 990 (page 7), filing year 2024
IRS Published Data (Business Master File) - Data Available
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
Data Sources (IRS Forms 990) - Data Available
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage accountability and finance data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Nevus Outreach Inc.) or EIN (593455128) in the 'Search Term' field.
Impact & Measurement
Not Currently Scored
Nevus Outreach Inc. cannot currently be evaluated by our Impact & Measurement methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Nevus Outreach Inc. cannot currently be evaluated by our Culture & Community methodology because we have not received data from the charity regarding its Constituent Feedback.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission.
NEVUS OUTREACH IS DEDICATED TO BRINGING AWARENESS, PROVIDING SUPPORT, FUNDING RESEARCH, PROVIDING A BIENNIAL CONFERENCE, AND FINDING CURES FOR PEOPLE AFFECTED BY CONGENITAL MELANOCYTIC NEVI RELATED DISORDERS. THE ORGANIZATION RAISES AWARENESS INTERNATIONALLY BY PUBLISHING INFORMATIONAL LITERATURE, HOSTING A WEBSITE WITH INFORMATION ABOUT THE CONDITION, WORKING WITH OTHER NEVUS ORGANIZATIONS WORLDWIDE TO RAISE AWARENESS ON RARE DISEASE DAY. IN ADDITION, THE INTERNATIONAL CONFERENCE AND REUNION PROVIDES EDUCATION AND CONNECTION FOR ALL AGES. PEOPLE FROM ALL OVER THE WORLD ATTEND THIS CONFERENCE. NEVUS OUTREACH FUNDS RESEARCH ADVANCING SCIENCE ON CONGENITAL MELANOCYTIC NEVI AND RELATED DISORDERS SUCH AS NEUROCUTANEOUS MELANOCYTOSIS.
Vision Statement
10 out of 10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization's vision.
Nevus Outreach is the recognized source for those affected by CMN, NCM, and related
disorders.
Strategic Goals
20 out of 20 points
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Growing Nevus Outreach's workforce to deepen our engagement with the community and advance our mission.
Goal Two: Nevus Outreach explore patient registry to Improve Care for People with Nevi.
Goal Three: Maximize positive outcomes and empower constituents through increasing global embracement, improving physical and emotional well-being, and eliminating deaths from CMN, NCM, and related disorders.
Leadership
30 out of 30 points
Full Credit
Partial Credit
No Credit
Investment in Leadership Development
15 out of 15 points
The nonprofit provides evidence of investment in leadership development.
Our organization believes that the development of leadership and staff future our mission and helps to provide us with the best opportunity for future growth. In the last twelve months, our Executive Director, Board Members, and Fundraising committee (volunteers). Through this process, they participated in Asking Academy Fundraising Training a three-day symposium to develop leadership and fundraising aptitude, including follow-up training and continued development to prepare for the next capacity campaign.
External Focus on Mobilizing Mission
15 out of 15 points
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Collaborative Engagement
Thought Leadership
Social Promotion
Civic Engagement
Public Policy Advocacy
Adaptability
30 out of 30 points
Full Credit
Partial Credit
No Credit
Adaptability Practices
30 out of 30 points
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year
Over the past 25 years, Nevus Outreach has changed in many ways to meet the ever-evolving needs of our community. We have always found a way to answer the call for support, advocacy, and research. As an organization, we are committed to continuous improvement and are always seeking solutions to streamline processes and develop systems that will carry us through the next 25 years and beyond.
We have seen significant changes in technology, security, HIPAA protocols, and the COVID-19 pandemic, all of which have impacted the way we do business. We have adapted to these changes and continue to innovate in order to provide the best possible support to our community.
We are proud of our history of service and look forward to continuing to make a difference in the lives of people affected by nevi.
Here are some specific examples of how Nevus Outreach has adapted to change:
Technology: Nevus Outreach has embraced new technologies to improve the way we communicate with our community and deliver services. For example, we launched a project management tool to help our team and volunteers work asynchronously making it easier for work to get done.
Security: Nevus Outreach has implemented security measures to protect the privacy of our members. For example, we maintain PCI compliance and have developed a Data Asset Management protocol.
HIPAA: Nevus Outreach is committed to complying with HIPAA regulations.
COVID-19: Nevus Outreach has adapted to the COVID-19 pandemic by offering a virtual conference.
By adapting to change, Nevus Outreach is able to continue to provide support to people with nevi. The organization is committed to improving the lives of people with nevi and will continue to adapt to the challenges that it faces.